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JESY Nelson has revealed her “heart is super heavy” as she shared an SMA screening battle update to social media.

The doting parent, 34, has been relentlessly campaigning for SMA1 screenings in England after her twins were diagnosed with the rare muscle wasting disease.

Jesy took to Instagram and said “Today my heart feels super heavy. It’s a very bitter sweet moment today knowing that Scotland has become the first UK nation to screen babies for SMA.

“We’re so close yet so far.

“I will never be able to understand why we are still not testing for it in England.

“To know that my girls lives and so many other children in England could look so different if this had of been there for them.

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“But never the less I will keep fighting and pushing for change because nobody should ever have to go through this heartache.”

Earlier, Jesy also shared a beautiful video clip of her daughter Ocean sitting up, as she said: “She’s proving everyone else wrong,” and that they are “going to get there.”

Jesy recently became successful in gaining over 100K signatures on her petition to fund SMA1 screenings.

The good news meant it will now be debated by MPs in the House of Commons.

Jesy has been campaigning for change and demanding the heel prick test be included in newborn health plans to help catch the condition early.

The tots have the most severe form of a rare muscle wasting disease and may never be able to walk.

The former X Factor star gave birth to her little girls prematurely at 31 weeks in May last year.

Jesy first revealed her children’s’ devastating diagnosis in an emotional video.

She has emotionally spoken out about how she could have saved her twins’ legs before their diagnosis.

It comes after the second series of her show Jesy Nelson: Life After Little Mix has already been confirmed and will be coming to the small screen later this year.

The popstar confirmed she’ll be fronting the follow-up programme on Amazon Prime Video focussing on her little girls’ health battle.

The singer, 34, rose to fame in the band after they were created on talent show The X Factor, but left the group in 2020 – with the girls continuing on as a three-piece following her departure.

The singer recently opened about a secret suicide attempt days before quitting the group.

Her abrupt exit from the girl band had been shrouded in mystery and she claimed her cry for help was ignored by bandmates Leigh-Anne Pinnock, Perrie Edwards and Jade Thirlwall.

It was the second time Jesy had tried to take her own life following an overdose in 2013, which she ­previously opened up about in her NTA-winning BBC documentary Jesy Nelson: Odd One Out.

A FEMALE rapped has died aged 37 after suffering a heart attack as her devastated friends pay tribute.

Gianina Gheorghiu recently passed away with her close friends revealing she had been battling an alcohol problem.

Going by the stage name Chica Con Canna, the rapper dominated the scene in her country, forging an impressive career.

The news left her friends and fans devastated after her death was announced on March 9.

The Romanian rapper was huge in her local scene, collaborating with stars such as Tony Batrânu, Vladone and Mike Diamondz.

Her close friend Dana Marijauna spoke of her death in a heartbreaking tribute to the musician.

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Although there is no official confirmation on what caused the heart attack Dana believes she “did not win the fight against alcohol”.

The rapper stated: “With tears in my eyes, with a fantastic love for Chica, who did not win the fight against alcohol.

“A girl with great talent, the best female voice and interpretation in English in the world of Romanian rap, soulful, generous, strong character.

“In vain, alcohol did not take into account all its countless qualities.

“We love you even in a billion years.

“We were supposed to record new songs, but we will do it without physical presence.”

The star’s untimely death has left a void in the Romanian rap industry with a number of artists, including Dana, claiming they had future projects with her.

The rapper confirmed that the projects will go ahead in her memory.

KATIE Price has warned that her son Harvey “will die of a heart attack” as she begs the NHS to put him of fat jabs.

The former glamour model, 47, revealed her worst fears for her 23-year-old son, who has a rare genetic disorder called Prader-Willi syndrome, which causes insatiable hunger, alongside autism, septo-optic dysplasia.

Last April Katie told fans that she was worried for her son’s life as he weighed nearly 30 stone.

And now the TV personality has shared another serious health update on the latest episode of her podcast.

A worried Katie said: “I’ve been on the case to doctors about putting him on the Monjaro.

“I’m actually going to put some up on Instagram to say, is there any private doctors out there because the NHS are so – I’m not slagging the NHS off, but they know he’s in the obese category.

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“When he sleeps, I worry because he’s snoring and wheezing.

“Then sometimes he holds his breath and I’m like, he’s massive, Sophie.

“He’s just getting bigger and he’ll end up dying of a heart attack.

“They’ve already told me years ago that if you don’t lose weight, he’s prone to a heart attack.”

She added: “I just feel so bad, so I’m going to have to do something.

“I mean, I’m not going to inject him myself because that’s not medically right to do for him. But something needs to be done.

“He’s just huge. So that’s that. But I’ve enjoyed having him.”

In January, Katie said Harvey was set to start fab jabs soon.

Katie confessed: “Things are definitely going to change for Harvey when we move because although he’s moving to adult residential, he’s also going to be starting Mounjaro.”

She explained she would be keeping an eye on him while he takes the medication, adding: “So, he’ll be losing weight.”

Harvey has several complex medical conditions, including Prader-Willi Syndrome, which causes an excessive appetite and weight gain, and autism.

Back in November, Katie spoke out in one of her podcast episodes, saying: “He’s not started fat jabs,” after speculation he had already started the weight loss injections.

She went on to say: “There are talks of fat jabs – of Mounjaro – for him.

“But when he was there, they’ve actually got a new weight loss drug coming out, and it’s new.

“They’ve clinically tested it on people and they’ve got a few people they’re putting it on first.”

Katie then said: “And if it works, then Harvey can go on it in the new year.

“But they want him to start the Mounjaro.

“Because if he goes on Mounjaro first and then goes onto this new one, it will work a lot quicker.

“The reason he hasn’t started Mounjaro yet is because they were trying to get him to lose weight through his diet, to try all avenues,” she explained.

Despite not being on fat jabs yet, Harvey has still lost a substantial amount of weight

Back in October, Katie opened up about how much weight he had lost.

“Last I heard, he lost 22lbs, is he still going?” Katie’s sister asked on their podcast last month.

Katie then revealed: “He’s lost a stone and a half. I can notice it on his chest, but not the belly yet.”