JESY Nelson has shared an adorable video of her daughter’s “ballerina” leg exercises amid her twins’ SMA diagnosis.
The singer gave birth to her little girls prematurely at 31 weeks last year.
And, back in January, Jesy bravely revealed the twins, Ocean Jade and Story Monroe, have since been diagnosed with Spinal Muscular Atrophy Type 1 (SMA1).
It is a genetic condition that weakens the muscles by damaging motor nerve cells in the spinal cord.
It leads to progressive muscle wasting, and if untreated, the life expectancy of a baby with SMA Type 1 is just two years.
Jesy and her ex-fiancee Zion Foster have been told it is unlikely the girls will ever walk, and may face serious breathing and swallowing difficulties.
The brave mum-of-two has been keeping her fans updated on the twins condition on social media.
Jesy, 34, has now shared a sweet clip of the twins doing their “ballerina” exercises to keep their legs mobile.
Speaking to one of the twins in the video, she said: “Are you gonna show them how you move your legs? Your a little ballerina, come on.
“Good girl. Little ballerina, yes you are.”
Progressive resistance training (PRT) with a little resistance band has the potential to increase strength and increase motor function in children and young adults with SMA, according to the National Institute of Health.
Jesy panned the camera up to her daughter’s face and she seemed super chilled as she bent and unbent her leg.
The tot was spotted with her feeding tube in her nose as it helps to clear their chests.
The former Little Mix singer recently released a fly-on-the-wall Amazon Prime documentary.
The series, which climbed to number one in Amazon’s viewing charts, follows her shock departure from Little Mix in 2020 and her journey to motherhood with her now ex-boyfriend Zion.
Since revealing her twins’ diagnosis, Jesy is now campaigning for the NHS to expand the standard heel prick test to screen for SMA1.
She says the test, which costs around £1, could have “saved their legs” by giving them access to treatment sooner.
If the twins had been tested and treated in time, there was a chance they would have avoided disability.