Nelson

Don Nelson, second on NBA all-time coaching win list, has died

Don Nelson, the second-winningest coach in NBA history who won five championships as a player with the Boston Celtics, died Sunday. He was 86.

Nelson’s death was announced by the Golden State Warriors, one of the teams he coached. They did not release details.

Nelson is one of two coaches in NBA history to have at least 250 wins with three different franchises — Milwaukee, Dallas and Golden State — also serving as general manager for all three franchises. He was a three-time coach of the year and made the playoffs 18 times in 31 seasons. He went to the conference finals three times with the Bucks and once with the Mavericks, never winning a title.

Nelson introduced what is now known as the point forward, and his up-tempo style of offense created a buzz. He said the idea of shifting from the dominant big men of the 1970s to an offense focused on speed and the fast break came from his playing days under Hall of Fame Celtics coach Red Auerbach.

The Celtics' Don Nelson drives to the basket under pressure from Milwaukee's Cornell Warner on May 12, 1974.

The Celtics’ Don Nelson drives to the basket under pressure from Milwaukee’s Cornell Warner on May 12, 1974, in Milwaukee.

(Associated Press)

“The league really hadn’t seen an offense like the one we were running, and the results were undeniable,” Nelson wrote in 2016 in the Players’ Tribune.

Nelson said that “without Red Auerbach teaching me the mechanics of running the fast break, none of it would have been possible. He deserves all the credit for Nellie Ball, and for how fast the game of basketball is played today.”

Nelson played 11 of his 14 seasons in Boston and was on five Celtics championship teams under four different coaches. He became an assistant coach in Milwaukee after retiring as a player, then took over after coach Larry Costello resigned 18 games into the 1976-77 season. Nelson coached the Bucks for 11 seasons starting in 1976 and won seven straight division titles.

In Nelson’s second season, Milwaukee overcame a 29-point fourth quarter deficit to beat Atlanta 117-115 in regulation.

“I coached the team as though I was still playing for the Celtics, while implementing a few of my own strategies,” Nelson wrote. “I knew I wanted to play unconventional basketball and use speed to my advantage.”

His fast-paced offenses were probably best on display with Golden State in the “Run TMC” era featuring future Hall of Famers Tim Hardaway, Mitch Richmond and Chris Mullin. Nelson said he wanted them on the court at the same time.

Nelson spent 11 seasons over two stints with Golden State. The first one was punctuated by a rift with rookie star Chris Webber, who was traded away a month into his second season. Nelson, demoralized by the trade, missed nine games that season because of illness and resigned under pressure three months later in February 1995.

In between, Nelson was fired after less than one season in New York in 1995-96, then coached in Dallas for eight seasons, missing 21 games with the Mavericks starting in December 2000 to recuperate from prostate cancer surgery.

Nelson’s son, Donnie, joined his father as an assistant coach with the Mavericks in 1998, later became general manager and remained with the organization until 2021. Together they persuaded 20-year-old German star Dirk Nowitzki to pass up European basketball and join the Mavericks. Don Nelson also developed Steve Nash into one of the NBA’s top point guards before Nash went on to win back-to-back MVPs with the Phoenix Suns in 2005 and 2006.

Warriors coach Don Nelson celebrates with his team after breaking the record for NBA career coaching victories in 2010.

Golden State Warriors coach Don Nelson celebrates with his team after breaking the record for NBA career coaching victories with a victory over the Minnesota Timberwolves on April 7, 2010, in Minneapolis. It was Nelson’s 1,333rd win.

(Paul Battaglia / Associated Press)

“Don Nelson was a true innovator whose influence on the game of basketball is still felt today,” current Warriors coach Steve Kerr said. “He consistently challenged conventional thinking, experimented with different lineups and styles of play and saw possibilities in the game that others often did not. So much of what is now commonplace in the modern NBA can be traced back to the way Nellie approached the game.”

At Golden State, Nelson’s “We Believe” Warriors led by Baron Davis upset Nowitzki and the top-seeded Mavericks in the first round of the 2007 playoffs in one of the biggest shockers in NBA history. In his final season as a coach, Nelson mentored rookie Stephen Curry in 2009-10.

“One of the big reasons I was drafted by the Warriors was because of Don Nelson. The story is he never liked rookies, but from Day 1 he challenged me and gave me an opportunity to be my best self on the court,” Curry said in a statement released by the Warriors. “He taught me a lot during our one season together and I’ll never forget the night he became the winningest coach in NBA history in Minnesota. We were so happy for him. He had an immeasurable impact on the sport and will go down as one of the greatest minds in the history of the game.”

Davis added: “When I think of Nellie, I’ll always think of the ‘We Believe’ team and our incredible run in 2007. He understood what made us go and made us believe we could beat anybody, ultimately helping us make history as the first No. 8 seed to defeat a No. 1 seed in a seven-game series. That time in my life and career was truly special, and Nellie was a huge part of making it possible.”

Don Nelson laughs while receiving the Chuck Daly Lifetime Achievement Award during a news conference on June 8, 2025.

Don Nelson laughs while receiving the Chuck Daly Lifetime Achievement Award during a news conference on June 8, 2025, in Oklahoma City.

(Kyle Phillips / Associated Press)

Nelson retired as the NBA’s career coaching wins leader with 1,335, just ahead of Lenny Wilkens’ 1,332. Nelson kept that top spot for nearly 12 years before close friend and now-retired San Antonio coach Gregg Popovich passed him in March 2022.

Nelson was inducted into the Naismith Memorial Basketball Hall of Fame in 2012. In 2025 he received the Chuck Daly Lifetime Achievement Award, presented by the National Basketball Coaches Assn. Miffed that the Mavericks sent Luka Doncic to the Lakers in a blockbuster trade, Nelson wore a pair of Doncic’s signature Jordan Brand sneakers to the awards ceremony. He called the trade a “tremendous mistake.”

Born in Muskegon, Mich., Nelson attended high school in Rock Island, Ill., and averaged a double-double in college at Iowa. He spent his retirement years living on the Hawaiian island of Maui and owned several short-term rentals on the island.

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How tragic pal helps Jesy Nelson with ‘never-ending’ heartbreak after sick twins’ health takes a turn for the worse

THE devastating reality of raising twins with a life-limiting condition has taking a huge toll on Jesy Nelson. But now she has revealed a secret strategy which she has kept from fans, that is helping her cope.

The former Little Mix star opened up about how she’s dealing with her twins’ health taking a turn for the worse – admitting it’s “got her through” her lowest of times since her one-year-olds Ocean Jade and Story Monroe were diagnosed with Spinal Muscular Atrophy Type 1.

Jesy Nelson broke down in tears over her guilt about not spotting the SMA signs in her twins Credit: instagram/@jesynelson
Jesy’s twins Ocean and Story have Spinal Muscular Atrophy Type 1 Credit: Instagram/Jesynelson

Last month The Sun told how, at the girls’ most recent three-month review at St Ormond Street’s Children’s Hospital, doctors warned they are not responding to treatment the way they had hoped.

It came days after she said she “can’t stop crying” over her “bittersweet” victory to change Government policy to test all babies in England with SMA – knowing it came too late for her twin daughters.

Now Jesy says she is using the devastating death of her friend’s child to combat fears she’ll be “heartbroken every day for the rest of her life” – after admitting she’s struggling to cope with her daughters’ prospects.

The 35-year-old told The Sun in an emotional interview: “One thing I constantly remind myself – and I think about it every single time I go to Great Ormond Street – is that there are always people worse off than you.

“I’ve got someone really close to me who lost their little girl and the pain that I feel for her every day…

“She would give anything to have her little girl back, whether she had what the twins have or whatever.

“I have to remind myself that, yes, I’m in this situation and it’s f***ing hard, it’s heartbreaking, but it could be worse.

“I just have to be grateful that my girls are still here and they are happy and I still get to see them every day.

“That is what gets me through. Genuinely, that is what I have to just remind myself every day.”

Jesy’s fight to add screening for spinal muscular atrophy to the NHS newborn blood spot test featured in her new Prime Video documentary, Jesy Nelson: Life Changing.

Every year 50 babies born with the condition will now find out they carry the genetic condition at birth. It means they can be given treatment before nerves and muscles are damaged beyond repair.

During the 60-minute programme, Jesy broke down in tears over the guilt she carries and worries her children will blame her, when they’re older, for not spotting the signs sooner.

The late diagnosis means the girls will most likely never be able to walk and will have problems breathing, eating and drinking on their own.

Jesy said it was a “tough pill to swallow” and she struggles to accept the diagnosis.

“I constantly battle between manifesting they’re going to defy the odds and trying to come to accept that that may not happen.

“It’s a really weird position to be in because you you think ‘well, if that doesn’t happen, am I just going to feel heartbroken for the rest of my life?’

Jesy Nelson: Life Changing documentary features the singer revealing her guilt over her twins’ health issues Credit: Amazon
It is feared Jesy’s girls will never be able to walk Credit: Instagram/JesyNelson

“Then you worry, if I accept it, am I also manifesting that?”

She added: “Another friend of mine whose friend lost a child gave me advice, which I thought was really poignant.

“Basically he said, ‘you can’t live your life feeling heartbroken if it doesn’t happen’.

“He pointed out ‘you’re never going to enjoy the special moments with your girls because you’re constantly going to be thinking, ‘but I want this and I wish this had happened.’

“I’ve really tried to make peace with that. It’s a constant mind battle.”

Jesy now has to face both twins needing further operations – as well as Story being diagnosed with scoliosis, the abnormal curvature of the spine in an S-shape.

After recent test results, she told us: “Unfortunately, some of the numbers have gone down. We had a long discussion and there’s a possibility they may have to go back on treatment, which is just heartbreaking.”

The girls – who are on feeding tubes – will both undergo an op soon to repair trauma to their nose and throat.

The 35-year-old has been working tirelessly for the SMA community Credit: Shutterstock Editorial
Jesy says her girls ‘are the happiest babies in the world’ Credit: Instagram

Doctors will find an alternative way to feed the girls to avoid further damage.

Meanwhile Story will have to have an operation every six months because of her scoliosis.

“It’s never-ending,” added Jesy.

Asked how she copes on her toughest days, Jesy said: “I don’t really get a lot of time where I get to be by myself, but I think music is one of the biggest forms of therapy.

“So if I have to go to the shops, and my mum is obviously looking after the girls, I’ll get in my car and that’s one of my favourite times because I can blare out my music, which I never get to do.

“It’s the best and I just find it so therapeutic.”

A phased rollout to enforce SMA screening in England will begin in October 2026, but Jesy’s fight doesn’t end there.

She is continuing to raise awareness of the condition because the screening won’t be available in other parts of the UK.

“I hope as many people as possible see the documentary because I wanted to raise as much awareness as I could about it and the signs to look out for”, added Jesy.

“As amazing as the rollout is, Northern Ireland and Wales are still not part of the heel-prick test, meaning many babies will still be undiagnosed and not treated in time.

“I’m just praying that if they watch this documentary, they will spot the signs early enough, take them to the doctor and get them treatment.”

  • Jesy Nelson: Life Changing is available exclusively on Prime Video.
Jesy with Little Mix’s Leigh-Anne Pinnock (far left), Jade Thirlwall (left) and Perrie Edwards (far right) Credit: Getty
Jesy Nelson: Life Changing is out on Prime now Credit: Amazon

Spinal Muscular Atrophy: Signs and symptoms

Spinal muscular atrophy is a disease which takes away a persons strength and it causes problems by disrupting the motor nerve cells in the spinal cord.

This causes an individual to lose the ability to walk, eat and breathe.

There are four types of SMA – which are based on age.

  • Type 1 is diagnosed within the first six months of life and is usually fatal.
  • Type 2 is diagnosed after six months of age.
  • Type 3 is diagnosed after 18 months of age and may require the individual to use a wheelchair.
  • Type 4 is the rarest form of SMA and usually only surfaces in adulthood.

What are the symptoms?

The symptoms of SMA will depend on which type of condition you have.

But the following are the most common symptoms:

• Floppy or weak arms and legs

• Movement problems – such as difficulty sitting up, crawling or walking

• Twitching or shaking muscles

• Bone and joint problems – such as an unusually curved spine

• Swallowing problems

• Breathing difficulties

However, SMA does not affect a person’s intelligence and it does not cause learning disabilities.

How common is it?

The majority of the time a child can only be born with the condition if both of their parents have a fault gene which causes SMA.

Usually, the parent would not have the condition themselves – they would only act as a carrier.

Statistics show around 1 in every 40 to 60 people is a carrier of the gene which can cause SMA.

If two parents carry the faulty gene there is a 1 in 4 (25 per cent) chance their child will get Spinal muscular atrophy.

It affects around 1 in 11,000 babies.

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Scandals haven’t stopped Ken Paxton. Can James Talarico change that?

Eight years ago, during a campaign for Texas attorney general, Justin Nelson ran television advertisements with security camera footage of Ken Paxton pocketing an expensive pen that didn’t belong to him.

Four years ago, George P. Bush went after Paxton by putting up billboards that said “he’s a crook” next to his mugshot from when he was charged with securities fraud.

And this year, U.S. Sen. John Cornyn said “judgment day is coming” as he tried to fend off a Republican primary challenge from Paxton.

All of them lost. Now the question is whether James Talarico, who topped Rep. Jasmine Crockett in an expensive and fiercely contested Democratic primary, will have any more luck as he faces off against Paxton in one of the country’s most closely watched U.S. Senate races.

“The guy’s ability to take shots and just keep moving on and stay in elected office is unlike anything I’ve ever seen in my career, in 25 years of running campaigns,” said Ash Wright, who worked as a senior adviser to Bush.

Paxton never has been convicted and he’s survived by championing conservative legal battles over immigration, abortion and transgender issues in a Republican-dominated state. Much like President Trump, he’s long portrayed himself as the victim of political persecution.

Democratic Senate candidate James Talarico

Democratic Senate candidate James Talarico speaks at a rally in Houston in May.

(Danielle Villasana / Getty Images)

Former Paxton challengers and a half-dozen campaign strategists who worked against him warned that Texans may tune out any attempt to revive scandals that they’ve heard about for years, especially when rigid partisanship has convinced voters to be extraordinarily forgiving of candidates’ trespasses.

However, Talarico’s team has studied the previous races and is attempting its own version of the playbook by trying to paint Paxton as part of a broader culture of corruption that has failed to improve people’s lives.

Paxton’s campaign suggested Talarico’s claims were aimed at distracting voters from a record of “out-of-touch views.”

“Every time a fighter, like President Donald Trump and now Ken Paxton, stands up to the permanent political class, even after they are completely acquitted of wrongdoing, people like James Talarico continue pushing the same accusations and claiming corruption,” Paxton campaign spokesperson Madison Cercy said.

Paxton won first reelection despite indictment

Paxton was first elected as Texas attorney general in 2014, and Nelson ran against him in 2018. A Democratic lawyer from Austin, Nelson made Paxton’s indictment on charges of securities fraud central to his campaign, and poked fun at him for picking up another lawyer’s $1,000 pen after finding it at a courthouse security checkpoint.

“Vote Justin Nelson for Texas attorney general,” the narrator said. “He will fight on behalf of all Texans. And he won’t steal your pen.”

Nelson argued that his approach was effective, reflected in Paxton’s narrow margin of 3.6 percentage points in a year when Republican Greg Abbott was reelected as Texas governor by more than 13 percentage points. Nelson’s campaign spent roughly $6.5 million, about half of what Paxton’s campaign spent.

“My message was working,” Nelson said. “I just needed to go louder and longer.”

In 2022, Paxton faced a Republican primary challenge from George P. Bush, the Texas land commissioner and the grandson and nephew of two former presidents from the state.

The securities fraud case was ongoing, and Paxton also was under federal investigation over accusations that he abused his position to benefit an Austin real estate developer, took bribes and retaliated against whistleblower employees.

Paxton responded by portraying himself as a Trump-era Republican and Bush as the heir to a privileged political legacy.

Pro-Paxton organizations spent more than $20 million, about twice as much as Bush and his allies. The race went to a runoff, in which Paxton defeated Bush by 34 percentage points.

Paxton ran against Rochelle Garza, a Democratic civil rights lawyer from Brownsville, in the general election. She said her campaign had a 300-page opposition research file on Paxton but it was difficult to figure out how to approach his past because voters had heard about it for years.

“The amount of potential hits on Paxton can make message discipline challenging,” Garza said.

Paxton ran as the leading legal opponent of President Biden, promoting a string of lawsuits against Biden’s Democratic administration on immigration, abortion and gender policy.

Overwhelmingly outspent, Garza lost by roughly 10 percentage points.

Some supporters see Paxton as a ‘flawed’ fighter

There was more trouble ahead for Paxton.

He split with his wife, who later filed for divorce “on biblical grounds.” He also was impeached by the Texas House, although the Senate acquitted him in 2023 and allowed him to remain in office. The securities fraud case ended in 2024, and Paxton was directed to pay nearly $300,000 in restitution.

Throughout the years, he’s maintained strong support from Republican voters like David and Nancy Lapp, a retired couple from the small town of Wolfforth. They described him as a conservative warrior who has been a victim of persecution.

“He’s had his share of scandals, and almost all of them have, so it’s not necessarily disqualifying anymore,” said David Lapp, 76. “He’s a flawed person, no doubt about it, but he fights for traditional American ideals.”

He added that “nowadays, as long as you’re not in jail, they’ll elect you.”

Beaumont writes for the Associated Press. Associated Press reporters Jesse Bedayn in Del Rio, Texas, and Marc Levy in Wolfforth, Texas, contributed to this report.

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Jesy Nelson breaks down in tears as she reveals mum guilt over twins’ struggle during heatwave

JESY Nelson has broken fans’ hearts as she confessed she’s been “crying all day” with mum guilt.

The mum-of-two has opened up on how her baby girls are struggling amid the high temperatures.

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Pop star Jesy has now opened up on her mum guilt Credit: Instagram
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Jesy Nelson confessed putting her baby girls into their spinal jackets and splints in this heat has left her feeling ‘heartbroken’ Credit: Jesy Nelson/Instagram

Taking to social media, she told her 10million followers that she is utterly heartbroken over having to put the twins into thick spinal jackets and splints in this heat.

Pop star Jesy shared a glimpse of the girls laying down in their rockers wearing their supports.

She penned over the clip: “I’ve cried all day. Imagine having to wear a spinal jacket and splints in this heat.

“I cannot even begin to tell you how much this breaks my heart into a million pieces. But, if I don’t put them on every day, their spines and feet will only deteriorate and get worse.”

PROUD MUM

Jesy Nelson shares her daughter’s milestone moment amid heartbreaking SMA battle


in the mix

Jesy Nelson shows off rock hard abs in a bikini as she wails ‘take me back’

“These will never correct their spine or feet, it will only prevent it from getting any worse,” continued Jesy.

“Once again no future SMA babies need to suffer like this if they are given the heel prick test and treatment from birth!”

Despite the temperatures soaring above 30 degrees this week, the girls looked content waving their little hands around and taking in their living room.

Dani Dyer wrote in the comments: “Oh Jesy. You are doing amazing,” followed by two red heart emojis.

Billie Shepherd said: “Sending you all so much love. Super mumma, you are amazing.”

“They will still face every obstacle with the biggest smile. They have the best mummy ever and that’s all they need,” one fan penned.

The former Little Mix star’s baby girls – Story Monroe and Ocean Jade – are both battling Spinal Muscular Atrophy (SMA) Type 1 – the most severe form of a rare disease affecting muscle strength and movement.

Both Jesy and her ex-fiancé Zion Foster were told their twins were unlikely to ever walk, and may face serious breathing and swallowing difficulties.

Despite the slim odds, she shared a sweet picture of one of their daughters sitting up in a chair all by herself.

Since Jesy’s babies were diagnosed with SMA she has been tirelessly campaigning to make it mandatory for all newborns to receive a heel-prick to determine whether or not they have the disease.

If SMA is caught early the condition is usually treatable but when left undiagnosed it can be life-threatening and cause death within two years.

A fan told Jesy of her work in her comments: “Want to thank you – just had a baby in Scotland and got the SMA heel prick test as standard. Midwives personally named you and the work you’ve done as to why it’s now offered.”

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Jesy Nelson breaks down in tears at heartbreaking moment she’s told twins have SMA

Former Little Mix star Jesy Nelson was in tears as cameras caught the moment she was given her twin daughters’ devastating SMA diagnosis

Jesy Nelson has candidly shared the devastating moment her twin girls were diagnosed with Spinal Muscular Atrophy (SMA) sobbing: “I don’t know how I’m going to do this.”

The heartbreaking scenes were captured as she filmed for her upcoming documentary, Jesy Nelson: Life Changing. The Amazon Prime Video cameras were on hand to capture the former Little Mix star’s reaction to the awful news as she said she “can’t believe this is happening”.

Doctors revealed the tots’ tests had come back positive. According to the NHS, SMA is “a rare genetic condition that can cause muscle weakness”. The organisation says the condition gets worse over time.

She revealed her whole life has changed, and she was predicted to struggle with the diagnosis. And Jesy is seen with her head in her hands as she says: “I don’t know how I’m going to do this. I feel like I’m going to be heartbroken for the rest of my life.”

But she says she refuses to let anyone else feel her pain and is determined to change laws and regulations surrounding SMA testing. And she has continued to update her followers on her twins’ condition online as the documentary gets ready to air later this month.

In the caption for the trailer, Jesy wrote: “I’m really not sure where to start with this one…All I can say is that I urge everyone to watch this documentary. It’s the most heartbreaking series I’ve ever had to make, but it’s one that needed to be made if we’re ever going to see real change.

“This is only a small glimpse into what my girls have to go through every single day. It’s the reality that so many children born with SMA have to endure and this is only the beginning of their lives.

“I truly hope this helps people understand why the heel prick test and treatment from birth are so incredibly vital. Early diagnosis can change EVERYTHING. I’ll keep saying it until no family has to experience this again: no future babies born with SMA should have lives that look like this.”

She ended with a plea: “Please if you watch one thing, let it be this: “Jesy Nelson: Life Changing” on @primevideouk, streaming from July 17th.”

Last month, Jesy was in Parliament as MPs debated whether to test all newborns for spinal muscular atrophy. She joined forces with the Mirror to highlight her petition which was signed by over 150,000 people demanding all newborns are checked for spinal muscular atrophy.

Scotland introduced screening in March. However, a similar scheme for England will only have a limited roll-out. And Jesy expressed frustration after public health minister Sharon Hodgson defended the staggered launch.

Jesy said: “I cannot believe we are still debating this. You are basically telling me that if you live in a certain postcode, you’re not as important. It’s outrageous.”

The decision, though, was defended by the public health minister, who had said limited testing facilities were preventing a full roll-out of screening for SMA.

The singer highlighted how late diagnosis of her own one-year-old twins meant they began treatment too late after irreversible nerve damage was done. She has since been told they will never walk.

Jesy Nelson: Life Changing will be shown on Prime from July 17

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Jesy Nelson shares her twin daughters’ spinal braces with emotional message ahead of Parliament debate

JESY Nelson has shared her twin daughters’ spinal braces with an emotional message ahead of the upcoming Parliament debate.

The mum-of-two made a candid post explaining her daughters now have to wear them every day.

Jesy Nelson has shared her twin daughters’ spinal braces with an emotional message ahead of the upcoming Parliament debate Credit: Tiktok/Jesynelson
The mum-of-two appeared on social media in an emotional post explaining her daughters now have to wear them every day Credit: Instagram/Jesynelson

Jesy shared a snap of her twin daughters Ocean and Story’s spinal braces as she urged fans to attend the Parliament debate on SMA screening.

She captioned the image: “Just a reminder that future SMA babies’ lives don’t need to look like this!

“These are Ocean and Story’s spinal braces that [they] now have to wear every day.”

Jesy also shared a snap of the Parliament debate poster and wrote: “I hope to see as many of you there tomorrow. It’s going to be a big day.”

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Jesy also shared a snap of the Parliament debate poster Credit: Instagram/Jesynelson
Ocean Jade and Story Monroe were born prematurely in May last year and were diagnosed with Spinal Muscular Atrophy (SMA) Type 1 Credit: Instagram/Jesynelson
Jesy recently spoke out about the unjust and “nsane” SMA “postcode lottery” – which “decides if children will be disabled or not” Credit: Instagram
Jesy has fought hard to get SMA heel prick testing on the map Credit: Instagram/Jesynelson

It comes after Jesy spoke out about the unjust and “nsane” SMA “postcode lottery” – which “decides if children will be disabled or not.”

The loving mum appeared on social media in a candid video expressing her deep frustrations over ‘unfair’ Spinal Muscular Atrophy (SMA) heel prick testing.

The X Factor star – who has racked up over 150k signatures – is calling for SMA to be tested for at birth regardless of where you live.

The debate is set to take place tomorrow, June 22, and, if granted, SMA screenings will be added for newborns.

Jesy is calling for SMA screenings to be added for newborns all over England Credit: Instagram
The singer shared the areas currently missing out on screening Credit: Tiktok/Jesynelson

The singer’s daughters Ocean Jade and Story Monroe were born prematurely in May last year and were diagnosed with Spinal Muscular Atrophy (SMA) Type 1.

In the emotional video, the singer said: “I just wanted to come on here to basically chat about a few things that are just so incredibly important to me and I know so many other people.

“Some of you may be aware of the fact that I’ve been trying to get SMA as part of the heel prick test here in England, and thank God for you guys, the signatures got over 150,000 and because of that, it is now going to get debated in parliament this Monday coming up, which is just crazy to me to know that we did that and I just need you guys to know that this has never been debated in parliament before.

“There has been a whole community of people that have been screaming and shouting about this for years and years and years, and it’s never been able to get this far, because it’s been ignored every single time.

“But you guys did it, because you made enough noise and you supported this and you got it there and I cannot thank you guys enough…

“So many thoughts have been going through my mind over this week, because every time I think about it, I’m like, how am I going to Parliament on Monday to debate whether children, future children, are going to be disabled or not?

“That’s how deep it is, because if your child gets this treatment from birth with a simple heel prick test and they get this treatment, you would not even know that they have SMA. 

“That’s how deep it is, right? That is how life-changing this treatment is. You would not even know that your child has SMA, but if they don’t get this treatment and they don’t get the heel prick test, they will go on to be disabled…

“And not only be disabled, but they will go on to have breathing machines, coughing machines, constant operations. It never ever ends.

“And I still can’t believe that in this day and age, when we’ve had three life-changing treatments now for nearly six years, it’s still a thing. It’s still not here in England.

“It is being rolled out in October, but only in certain parts of England.

“How does that make sense? How are we playing postcode lottery with children’s lives? How is that okay? I cannot stress you how important this is.

“This is our future, future children we are deciding on. Mums now that are currently pregnant and maybe about to have a baby that could potentially have this disease. We’re basically going to decide whether they’re going to be disabled or not, like it blows my mind.

“And I just seem to stress this so much, because that’s how deep it is. We are playing with children’s lives and it is not okay.

“It’s not okay to be like, if you live in this area, your child won’t be disabled, but if you live in this area, yeah, they’ll be disabled.

“We’re not doing this anymore. We’ve made too much noise now for this to be ignored.

“Anyway, sorry for getting irate about this, but it makes me so sad to think that my children’s lives could look so different and not only my children’s lives, but so many other families and children are dealing with this across the whole of England.”

Alongside the tear-jerking post, she added: “We have had some amazing news that screening is due to start in October this year, which is a huge step forward!

“But there’s still a big problem… it will only cover 72% of England. That means some babies won’t be screened simply because of where they live.

“A postcode lottery like that just isn’t fair. Every baby deserves the same chance, everybaby’ss life matters!

“On Monday 22nd June, the petition will be debated by MPs in Parliament. I’ll be there alongside @gileslomax from SMA UK and we’re hoping this debate will help push for screening to be available for every newborn across England.

“We’ll be arriving at 5pm on Monday, and it would mean so much to see as many of you there as possible. We’d love to get a photo together outside Parliament before we head inside.

“Please if you can, tag your MP in the comments and ask them to attend the debate and support universal newborn screening for SMA.

“The areas currently missing out on screening are: Bristol, CambridgePortsmouth, Leeds, LiverpoolOxford.

“No baby should miss out because of their postcode. Let’s keep fighting until every newborn has the same opportunity. Thank you for standing with us every step of the way!”

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Perrie Edwards lifts lid on Jesy Nelson feud and admits she’s ‘broken’ over her twins ‘heartbreaking’ diagnosis

PERRIE Edwards has spoken out on ex-bandmate Jesy Nelson and shared her heartbreak over her twins’ diagnosis. 

Jesy, 34, previously shared the devastating news that her baby girls Story and Ocean had been diagnosed with SMA1

Perrie has lifted the lid on the state of her friendship with Jesy Credit: YouTube
Jesy quit Little Mix in 2020 and made some bold claims about that time in a recent documentary Credit: Daniele Venturelli/WireImage

Now Perrie, 32, has shared her support for her former friend, after Jesy quit Little Mix in 2020 and sparked a bitter fall-out among the girls. 

Appearing on Jamie Laing’s Great Company podcast, she said: “I mean, when I think everything we’ve been through as a group, and even though it ended in ways that I wouldn’t have wanted it to, and we’re not that close anymore and we’re not in each other’s lives, I still feel everything that the girls feel and I think they’re the same. 

“We’ll always have that weird connection. And seeing Jesy go through that, it broke me.

“Because you wouldn’t wish that on anyone. It’s literally wild. And as much as we’ve got our issues and, you know, I think I don’t want to see her go through that.

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Perrie, Leigh-Anne and Jade continued as a three-piece after Jesy’s exit Credit: Getty Images for Warner Bros
Jesy previously told how her twins Story and Ocean had been diagnosed with SMA1 Credit: Instagram

“I don’t want to see her hurt and I don’t want to see any of that. It’s heartbreaking.”

In her recent documentary Life After Little Mix, Jesy made some bold claims about Perrie, Jade Thirlwall and Leigh-Anne Pinnock. 

Recalling how she attempted to take her own life before quitting the group, she said: “I sat ­everyone down to explain how I was feeling and I remember one of the responses being, ‘Are you done now? Is that it?’

“She [one of the girls] was like, ‘Can I go now?’”

Fighting back tears, Jesy added: “That made me feel really alone. I felt like there was no point. That no one cared.”

And in her chat with Jamie, Perrie had her say. When he asked if she envisioned repairing her friendship with Jesy, she said: “If I’m being completely transparent, part of me wanted to until the documentary. And then part of me withdrew again. 

“I’m not a horrible person. I haven’t got a bad one in my body, but I can cut you off.

“There’s personal things, there’s public things, there’s everything. I don’t have the capacity for somebody like that in my life anymore. And that might make me sound like a bitch, but I just don’t have the energy for it.

“And as much as I will always love her, I don’t think I can hack that energy in my space.”

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