twin

U.S. ‘rock star’ Paralympic skier wins silver for late twin brother

Patrick Halgren, the self-proclaimed “rock star” of the Milan Cortina Paralympics, said he could feel the presence of his late twin brother in his silver medal-winning Para alpine ski run on Monday.

“He made this happen for real. He is the ski god and he has blessed me with speed today,” Halgren said of his brother Lucas Sven Halgren.

Lucas Sven died in a motorcycle accident in New Zealand in 2016, three years after Patrick nearly died and lost most of his left leg in another motorcycle accident.

Patrick has been plastering blue-and-yellow stickers that read “ SvendIt ” around Cortina d’Ampezzo, a play on “send-it,” which is Patrick’s mantra on life and a reference to his brother who went by Sven.

“He’s the reason I’m here. I’m just a vessel to cram love and combat hate down your throats. He inspired me to live life, but life is fragile. You can die,” Patrick said. “It’s all for him. It’s for my family. It’s for the people that have struggled. He’s dead. I’m here living, talking to you guys. I’m going to have who knows how many women and champagne after this. He liked that, too, but he doesn’t get that, and I do. I recognize that.”

Halgren celebrated in front of his parents, Peter and Kathy, which he said was “pretty cool.”

“But also, it sucks not having Sven here, so ups and downs,” the 33-year-old Halgren said after winning his first medal in his second Paralympics appearance.

“They went to Tijuana, Mexico, for their honeymoon 50 years ago. They picked up their dead kid in New Zealand, and they’ve watched me win the Paralympics at the most beautiful ski valley in the world,” Halgren told the Olympics website. “This is a surreal moment for them. This is an experience that will create a memory lasting a lifetime and such a good moment.”

Halgren said it was Sven who steered him to Para alpine skiing after the 2013 crash that nearly killed him and resulted in the above-the-knee amputation of his left leg.

“I died myself. I was in a coma for a month. I died four times,” he said. “They used a defibrillator to start my heart. Blood transfusion. I get it, and I’m lucky that I have that because I know what it’s like. Not many people do.”

Now it’s hard not to miss Halgren, and not only because of his long braids that are dyed red, white and blue. Always entertaining and joking with those around him, the outspoken American has taken on a showman personality at the Games.

At the podium ceremony, he performed an air guitar solo using his crutch. He said it was just “another Monday” for him.

“I am a rock star,” he added. “I always wanted to be this guy, Jim Brown, he was my idol. He was a professional football player, played lacrosse at Syracuse. I did both those sports, and he retired at the peak of his career and became basically the first Black action movie star. I always wanted to be him, and now I am him.”

Halgren said he “learned to be un-irritable, un-embarrassable.”

“It’s about being vulnerable in this life. It’s about trying things and failing. It’s OK to be embarrassed. It’s OK to look weird.”

As he talked to the media, Halgren was congratulated by nearly every rival that passed by. He was second to Switzerland’s Robin Cuche in the men’s super-G standing.

“Medals don’t mean anything to me. The love from all the people supporting me is what means anything to me,” he said. “I can feel, I can literally feel all the people who have ever given me well wishes and ‘Thanks’ and ‘Good lucks.’ I can feel them loving me and they’re the reason I won.

“You celebrate the victories the same as the defeats. I’ve been blessed to have to develop my character over the last 11 years, losing my leg and could either roll over and die, or I could become the greatest Patrick Halgren on Earth, and that’s what you’re seeing.”

His future plans?

“I would like to dominate the Earth in every category with one leg.”

Anything else? “My horse is thirsty, I’m out.”



Source link

Jesy Nelson shares adorable video of twin daughter’s ‘ballerina’ leg exercises amid SMA diagnosis

JESY Nelson has shared an adorable video of her daughter’s “ballerina” leg exercises amid her twins’ SMA diagnosis.

The singer gave birth to her little girls prematurely at 31 weeks last year.

Jesy Nelson revealed back in January that her twins had been diagnosed with SMACredit: Instagram/Jesynelson
Ocean Jade and Story Monroe were born prematurely at just 31 weeksCredit: Instagram/@jesynelson
Jesy shared a video of her daughter’s ‘ballerina’ leg exercises amid their SMA diagnosisCredit: Instagram

And, back in January, Jesy bravely revealed the twins, Ocean Jade and Story Monroe, have since been diagnosed with Spinal Muscular Atrophy Type 1 (SMA1).

It is a genetic condition that weakens the muscles by damaging motor nerve cells in the spinal cord.

It leads to progressive muscle wasting, and if untreated, the life expectancy of a baby with SMA Type 1 is just two years.

Jesy and her ex-fiancee Zion Foster have been told it is unlikely the girls will ever walk, and may face serious breathing and swallowing difficulties.

N-WORD SHAME

Little Mix’s Jesy Nelson slammed for racial slur video at New Year’s Eve party


BAND OF THREE

Jade Thirlwall drops biggest hint yet that full Little Mix reunion is OFF

The brave mum-of-two has been keeping her fans updated on the twins condition on social media.

Jesy, 34, has now shared a sweet clip of the twins doing their “ballerina” exercises to keep their legs mobile.

Speaking to one of the twins in the video, she said: “Are you gonna show them how you move your legs? Your a little ballerina, come on.

“Good girl. Little ballerina, yes you are.”

Progressive resistance training (PRT) with a little resistance band has the potential to increase strength and increase motor function in children and young adults with SMA, according to the National Institute of Health.

Jesy panned the camera up to her daughter’s face and she seemed super chilled as she bent and unbent her leg.

The tot was spotted with her feeding tube in her nose as it helps to clear their chests.

The former Little Mix singer recently released a fly-on-the-wall Amazon Prime documentary.

The series, which climbed to number one in Amazon’s viewing charts, follows her shock departure from Little Mix in 2020 and her journey to motherhood with her now ex-boyfriend Zion.

Since revealing her twins’ diagnosis, Jesy is now campaigning for the NHS to expand the standard heel prick test to screen for SMA1.

She says the test, which costs around £1, could have “saved their legs” by giving them access to treatment sooner.

If the twins had been tested and treated in time, there was a chance they would have avoided disability.

Former Little Mix star Jesy is campaigning for the NHS to include SMA1 testing in the standard baby heel prick testCredit: Shutterstock Editorial

Source link