TV & Showbiz Features

THE devastating reality of raising twins with a life-limiting condition has taking a huge toll on Jesy Nelson. But now she has revealed a secret strategy which she has kept from fans, that is helping her cope.

The former Little Mix star opened up about how she’s dealing with her twins’ health taking a turn for the worse – admitting it’s “got her through” her lowest of times since her one-year-olds Ocean Jade and Story Monroe were diagnosed with Spinal Muscular Atrophy Type 1.

Last month The Sun told how, at the girls’ most recent three-month review at St Ormond Street’s Children’s Hospital, doctors warned they are not responding to treatment the way they had hoped.

It came days after she said she “can’t stop crying” over her “bittersweet” victory to change Government policy to test all babies in England with SMA – knowing it came too late for her twin daughters.

Now Jesy says she is using the devastating death of her friend’s child to combat fears she’ll be “heartbroken every day for the rest of her life” – after admitting she’s struggling to cope with her daughters’ prospects.

The 35-year-old told The Sun in an emotional interview: “One thing I constantly remind myself – and I think about it every single time I go to Great Ormond Street – is that there are always people worse off than you.

“I’ve got someone really close to me who lost their little girl and the pain that I feel for her every day…

“She would give anything to have her little girl back, whether she had what the twins have or whatever.

“I have to remind myself that, yes, I’m in this situation and it’s f***ing hard, it’s heartbreaking, but it could be worse.

“I just have to be grateful that my girls are still here and they are happy and I still get to see them every day.

“That is what gets me through. Genuinely, that is what I have to just remind myself every day.”

Jesy’s fight to add screening for spinal muscular atrophy to the NHS newborn blood spot test featured in her new Prime Video documentary, Jesy Nelson: Life Changing.

Every year 50 babies born with the condition will now find out they carry the genetic condition at birth. It means they can be given treatment before nerves and muscles are damaged beyond repair.

During the 60-minute programme, Jesy broke down in tears over the guilt she carries and worries her children will blame her, when they’re older, for not spotting the signs sooner.

The late diagnosis means the girls will most likely never be able to walk and will have problems breathing, eating and drinking on their own.

Jesy said it was a “tough pill to swallow” and she struggles to accept the diagnosis.

“I constantly battle between manifesting they’re going to defy the odds and trying to come to accept that that may not happen.

“It’s a really weird position to be in because you you think ‘well, if that doesn’t happen, am I just going to feel heartbroken for the rest of my life?’

“Then you worry, if I accept it, am I also manifesting that?”

She added: “Another friend of mine whose friend lost a child gave me advice, which I thought was really poignant.

“Basically he said, ‘you can’t live your life feeling heartbroken if it doesn’t happen’.

“He pointed out ‘you’re never going to enjoy the special moments with your girls because you’re constantly going to be thinking, ‘but I want this and I wish this had happened.’

“I’ve really tried to make peace with that. It’s a constant mind battle.”

Jesy now has to face both twins needing further operations – as well as Story being diagnosed with scoliosis, the abnormal curvature of the spine in an S-shape.

After recent test results, she told us: “Unfortunately, some of the numbers have gone down. We had a long discussion and there’s a possibility they may have to go back on treatment, which is just heartbreaking.”

The girls – who are on feeding tubes – will both undergo an op soon to repair trauma to their nose and throat.

Doctors will find an alternative way to feed the girls to avoid further damage.

Meanwhile Story will have to have an operation every six months because of her scoliosis.

“It’s never-ending,” added Jesy.

Asked how she copes on her toughest days, Jesy said: “I don’t really get a lot of time where I get to be by myself, but I think music is one of the biggest forms of therapy.

“So if I have to go to the shops, and my mum is obviously looking after the girls, I’ll get in my car and that’s one of my favourite times because I can blare out my music, which I never get to do.

“It’s the best and I just find it so therapeutic.”

A phased rollout to enforce SMA screening in England will begin in October 2026, but Jesy’s fight doesn’t end there.

She is continuing to raise awareness of the condition because the screening won’t be available in other parts of the UK.

“I hope as many people as possible see the documentary because I wanted to raise as much awareness as I could about it and the signs to look out for”, added Jesy.

“As amazing as the rollout is, Northern Ireland and Wales are still not part of the heel-prick test, meaning many babies will still be undiagnosed and not treated in time.

“I’m just praying that if they watch this documentary, they will spot the signs early enough, take them to the doctor and get them treatment.”

• Jesy Nelson: Life Changing is available exclusively on Prime Video.

MOST young mothers cannot fathom the agony of losing custody of their babies, but for British model Lucia Bartoli, an unimaginable nightmare has taken a dark and twisted turn after a ‘social media ban’.

The 30-year-old Luton-born mum has spent the last year fighting a desperate, David-and-Goliath legal battle against her ex-boyfriend, the £700million German fashion designer Philipp Plein.

Now, in a devastating new blow, Lucia has been silenced after a bizarre move wiped her only lifeline – her Instagram account – off the internet, leaving her isolated and on the brink of homelessness in a foreign country.

Her devoted fans have expressed concern about her internet disappearance.

With celebrity supporters such as actress Alice Evans posting: “Lucia you are SO STRONG. No mother should have to go through this. We are all here for you. Don’t break. We have a collective voice and we can speak for you.. Silence is violence.”

Since her bitter split from Philipp in 2023, Lucia had bravely used her Instagram account to document the destruction of her family and rally support from more than 300,000 followers.

The platform became a crucial tool, helping her raise over £50,000 through GoFundMe to pay her mounting legal bills in her fight to be reunited with her two young sons.

But days after a crushing blow was dealt on June 30, when her Instagram profile appeared to have disappeared.

Friends of the model claim the account was abruptly suspended after five of her own personal family posts, dating back to 2019, 2023, and 2024, were hit by copyright claims.

It is not known who is reporting the young mum’s social media accounts.

A friend of the distraught mother told The Sun: “Lucia is devastated. She is alone in Switzerland and, she has a few good friends there but her main support network is either at home in the UK or online. Losing the account has therefore been a huge blow.”

The digital wipeout has left the young mother feeling completely bewildered and targeted.

Her pal continued: “This came out of nowhere, and Lucia is very confused as to why old content that had been online for years was suddenly flagged for copyright.

“She is desperate to get the account back and has been following all the official steps to try and appeal.”

Lucia’s erasure from the internet has even followed her to other apps, according to pals, who say she has had difficulty posting on TikTok.

The timing of this high-tech silencing campaign could not be worse for the desperate mother.

Lucia was recently evicted from an apartment owned by her billionaire ex and is now rapidly running out of funds.

She has been living in a temporary Airbnb in Lugano, Switzerland, to stay near the jurisdiction where her children reside, but that lifeline is about to be cut.

Revealing the terrifying reality of her living situation, her friend said: “Lucia won’t be able to afford to live in Switzerland for much longer.

“Right now, she is living in a temporary Airbnb where the booking runs out in the next 10 days and she is unable to fund another place with ongoing legal costs.

“She is financially dependent on strangers’ kind donations through her GoFundMe, and she is worried that she may have to fly back to the UK.”

Without her Instagram platform to share her story, those vital donations are at risk of drying up completely, threatening to physically separate her from her boys while her ex pushes ahead with an application to permanently relocate the children to the United States.

At the heart of this digital warfare is a very human tragedy: a mother fighting simply to see her children.

The estranged couple faced each other in court in Lugano, Switzerland again in June for a new hearing, but no settlement was reached.

Consequently, matters relating to custody and residency of the children remain undecided, and Lucia’s court-ordered custody arrangement has not changed.

She continues to endure the pain of having absolutely no visitation or contact with her eldest child – a heartbreaking reality she has faced for nearly a year.

While her contact with her youngest child remains restricted.

The emotional toll of fighting on multiple fronts is becoming unbearable. Her friend admitted: “Dealing with her account suspension, on top of preparing for the next stage of her custody battle, has been exhausting for Lucia, and it has been almost impossible for her to stay positive.”

Philipp, 48, who is dubbed the “King of Bling” for his jewel-encrusted and extravagant designs, won temporary full-time custody last year.

While Lucia battles to restore her Instagram account and faces the very real prospect of homelessness, Philipp has previously maintained that he never wanted the legal fight.

In a prior statement to The Sun, a spokesman for the designer: “Mr Plein always believed, with pure heart and total integrity, in the Swiss judicial system and defended his rights and those of his children in procedures that were not started by him, that he did not want and that he tried everything he could to avoid and prevent.

“He is now facing the big challenge of protecting his children, himself, his family and his business.

“He will continue this fight to achieve respect and protection for his children.”

For Lucia, however, the fight is simply about survival and a mother’s desperate hope to hold her children again.

But with her funds drying up, her legal options narrowing, and her voice systematically erased online, the odds against this British mum have never looked so terrifyingly steep.