mum

Jesy Nelson reveals heart-stopping moment her mum raised the alarm on twins’ SMA struggle after moving to Cornwall

JESY Nelson has described the terrifying moment her mum raised the alarm about her twins’ SMA struggle.

The pop star secretly moved to Cornwall after giving birth to the two little girls following a high-risk pregnancy.

Jesy Nelson with her mum Janice White
Ocean and Story have been diagnosed with SMACredit: Instagram

She says her mum Janice noticed Ocean and Story’s lack of leg movement on a trip to visit them.

Speaking on Jamie Laing’s podcast Great Company with Jesy Nelson, the former Little Mix star said:  “Me and Zion decided we wanted to move to Cornwall because our babies had been through all this trauma, and we just wanted them to grow up in a peaceful setting and just be around the sea and live like a kid.

“I honestly was not even taking notice of their legs because they’re my first set of children, so I don’t know how they should be moving their legs, or what they should and shouldn’t be doing anyway.

“Because we had just moved six hours away, my mum wasn’t with me every day.

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“I think she noticed how much it had deteriorated, and she said, ‘Jesy, they don’t move their legs very much. Have you noticed that?’

“She kept comparing them to my nephew, but I said George was a full time baby and because the twins were premature you can’t compare them.

“She said, ‘I know Jesy, but something’s not right’.

“My mum is such a such a worrier. She worries about everything – a bit like me, she thinks the worst in every situation.

“And so I just thought that was her over-worrying then a week went by, and I remember changing their nappy and just thinking ‘oh, god, they actually don’t move their legs at all’.

“For some reason they just stopped.”

Jesy with her now ex-partner Zion gave birth in May 2025Credit: jesynelson/Instagram

Fearing her mum was right, Jesy booked to see a paediatrician straight away.

After being told the babies needed blood tests and a brain scan, Jesy left the doctors in tears.

She was later told the identical twins have Spinal Muscular Atrophy Type 1 — the most severe form of a rare disease affecting muscle strength and movement.

Jesy is now working tirelessly to raise awareness of SMA and campaigning for the condition to be added to the NHS newborn heel-prick test, which currently screens for ten other conditions.

She spoke to The Sun about the diagnosis and her new new six-part docuseries on Prime Video, which follows her journey into motherhood as she reflects back on her time in Little Mix.

It’s the first time she’s opened up about quitting the band in 2020.

Read our full interview with Jesy about hope of reconciling with her former Little Mix friends and mending her relationship with Simon Cowell here.

  • Jesy Nelson: Life After Little Mix will be aired on Prime Video from February 13.
  • Listen to Great Company with Jesy Nelson whereever you get your podcasts.

Spinal Muscular Atrophy: Signs and symptoms

Spinal muscular atrophy is a disease which takes away a person’s strength and it causes problems by disrupting the motor nerve cells in the spinal cord.

This causes an individual to lose the ability to walk, eat and breathe.

There are four types of SMA – which are based on age.

  • Type 1 is diagnosed within the first six months of life and is usually fatal.
  • Type 2 is diagnosed after six months of age.
  • Type 3 is diagnosed after 18 months of age and may require the individual to use a wheelchair.
  • Type 4 is the rarest form of SMA and usually only surfaces in adulthood.

What are the symptoms?

The symptoms of SMA will depend on which type of condition you have.

But the following are the most common symptoms:

• Floppy or weak arms and legs

• Movement problems – such as difficulty sitting up, crawling or walking

• Twitching or shaking muscles

• Bone and joint problems – such as an unusually curved spine

• Swallowing problems

• Breathing difficulties

However, SMA does not affect a person’s intelligence and it does not cause learning disabilities.

How common is it?

The majority of the time a child can only be born with the condition if both of their parents have a faulty gene which causes SMA.

Usually, the parent would not have the condition themselves – they would only act as a carrier.

Statistics show around 1 in every 40 to 60 people is a carrier of the gene which can cause SMA.

If two parents carry the faulty gene there is a 1 in 4 (25 per cent) chance their child will get spinal muscular atrophy.

It affects around 1 in 11,000 babies.

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Mum forced to miss £820 holiday and is BANNED from flight after tiny passport mistake 

A WOMAN was forced to miss her holiday after she was stopped from boarding an easyJet flight when they discovered an issue with her passport.

Donna Fairclough was due to fly out of Manchester Airport and was ‘heartbroken’ to miss out on an £820 holiday to Malta.

Damage on her passport meant that Donna Fairclough missed out on her holidayCredit: Kennedy Newsand Media
Donna was turned away from her flight at Manchester Airport in early JanuaryCredit: Kennedy Newsand Media

Donna Fairclough and her fiancé Gary Broadley were due to fly to Malta from Manchester Airport on January 3, 2026.

However, Donna was turned away from the flight by easyJet because of a sizeable tear in her passport.

The damage was across the photo page of her travel document and the size of the tear meant that she wasn’t allowed to board the flight.

Talking to Manchester Evening News, Donna said: “The rip was initially about a quarter-of-an-inch. I was excited to go away. It was heartbreaking because we lost out on a holiday because of a rip.

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“I said to my partner, you can still see my face and my passport number and it didn’t affect any of that. That’s what I couldn’t understand.”

As well as missing out on their holiday, the pair have claimed that easyJet won’t refund them for their break as the rip is classified as ‘accidental damage’.

Advice on the Gov.UK website reads: “If your passport is damaged you must replace it. You may not be able to travel with it. HM Passport Office will consider your passport damaged if […] any of the pages are ripped, cut or missing.”

HM Passport Office will also consider your passport damaged if you cannot read any of the details, the cover is coming away, or if there are stains on the page.

Donna has since got a new passport and has urged other holidaymakers to check theirs before travelling.

easyJet responded in a statement that the airline is “sorry” that Ms Fairclough was not able to go on her holiday and “understand how disappointing this must have been”.

The airline added it “works closely with the authorities and complies with their guidance to ensure the safety and security of customers and crew, and this means we can’t allow anyone to travel if their documentation is damaged.”

They then advised Donna on how she could get a new passport and have been in touch with further support.

Donna was stopped at before boarding the flight at Manchester AirportCredit: Alamy

It’s not just damage to passports that can halt passengers from boarding flights, issues with expiry dates have caught travellers out too.

Previous rules allowed British passport holders to roll over 10 months from their previous passports meaning they’d have validity of up to 10 years and 10 months.

But the current rules no longer see those additional 10 months as valid, even if they are on your passport.

So, if your passport was issued in June 2015, but your expiry date says September 2025, that expiry is actually incorrect.

Instead, your passport would have expired 10 years past the start date – making the real expiry is actually June 2025.

There’s also the three month rule – a number of countries require British holidaymakers to have a few additional months left on their passport to travel.

Most places in Europe require British travellers to have at least three months left on the passport before it expires.

Passport Rules

Everything you need to know about passports

Here’s another common passport mistake that is costing Brits £1.1million a year on holiday.

And another woman was left sobbing after easy passport mistake saw her BANNED from her flight.

easyJet stopped Donna boarding her flight after finding damage to has passportCredit: Getty

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Looking for My Mum | Documentary

A young Tunisian man goes on a personal journey to find his biological mother and understand where he comes from.

Twenty-one-year-old Moez al Shreiti was given up by his Tunisian mother at birth but is absolutely determined to find out where he comes from. His search takes him on a roller-coaster journey to find answers to the question that’s dominated his young life. This observational film follows his sometimes painful search with all its obstacles, going to courts and hospitals and trying to get hold of official records. Moez often gets frustrated by the whole process, and it takes an emotional toll on him, but with the help of music, the support of close friends and a “psychodrama” group, he finds ways of coping. His foster family and community workers also keep him grounded in the face of the barriers he encounters while looking for the answer to the burning question deep within him.

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Newly single Jesy Nelson jokes she’s ‘not always a haggard mum’ after glam makeover

NEWLY single Jesy Nelson today joked that she’s “not always a haggard mum” as she revealed her glam makeover.

The former Little Mix star, 34, has had a tough time lately after she split from her fiance Zion Foster, and also having her twin daughters being diagnosed with Spinal Muscular Atrophy Type 1.

Jesy Nelson showed off her stunning glam makeoverCredit: Instagram
It comes after Jesy recently split from her fiance, Zion FosterCredit: instagram/jesynelson
Jesy and Zion’s twins have been diagnosed with Spinal Muscular Atrophy Type 1.Credit: Instagram/Jesynelson

But today the mum-of-two showed off her glam makeover, as she enjoyed some pamper time after a gruelling month.

Jesy looked incredible in the photo, which she posted on her Instagram.

The singer had her trademark curly hair styled to perfection, and her make-up had been expertly applied.

The star completed her sexy look with a lowcut black crop top.

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Jesy captioned her post: “Not always a haggard old Mum thanks to my @zoejamesmakeup.”

TOUGH TIME

Jesy treated herself to the glam makeover after enduring an incredibly tough time lately.

This includes her break-up with fiance Zion, after only getting engaged four months ago.

When news of their split emerged, a source told The Sun: “Jesy and Zion remain friends and are fully focused on their daughters.”

The insider added that the former couple are “united in co-parenting”, Zion and Jesy have been focusing on the wellbeing of their twins.

The new parents have been coming to terms with their two daughters, Ocean and Story, being diagnosed with Spinal Muscular Atrophy Type 1 — the most severe form of a rare disease affecting muscle strength and movement.

Jesy and Zion have been told it is unlikely the girls will ever walk, and may face serious breathing and swallowing difficulties.

Symptoms of SMA depend on which type of condition, but the most common include floppy or weak arms and legs, as well as swallowing and breathing problems.

If untreated, the life expectancy of a baby with SMA Type 1 is two years.

Early intervention is ­considered critical in limiting long-term impacts.

If the twins had been tested and treated in time, there is a chance they would have avoided disability.

It is now unlikely they will regain their neck strength after the disease caused nerve cells to die, leading to progressive muscle weakness.

Ocean and Story are under the care of Great Ormond Street Hospital in ­central London and have received treatment, including a one-off gene-therapy infusion approved by the NHS.

Jesy and Zion are committed to co-parenting their twin girlsCredit: Shutterstock

‘TRAUMATIC MOMENTS’

Meanwhile, in the wake of their split, Jesy’s ex Zion shared a candid post about “traumatic moments” and “stress”.

It came following the release of the first trailer for the singer’s new Amazon Prime docu-series; Jesy Nelson: Life After Little Mix, Zion has shared an insight into what went on behind the cameras.

Sharing the trailer, Zion wrote: “It’s finally here, coming to your screens via @primevideouk & @navybee.tv.

“The past year and a half has been a rollercoaster. When @jesynelson and I started this project we couldn’t see the road ahead, but to see how it all played out and having it filmed simply feels like God’s plan. The show is raw, authentic and honest.”

Continuing to reference their daughters Ocean Jade and Story Munroe’s diagnosis, Zion admitted it has been a “traumatic” time.

He said: “As a new family we were under immense pressure and stress. Alot of traumatic moments but nonetheless we made it here today. I believe this is only the beginning of our journey.

“Praying for clarity, peace and growth so we can continue to navigate the challenges we face; and give Ocean and Story the best support system possible. God’s in control”.

Jesy is unleashing her new documentary, Jesy Nelson: Life After Little MixCredit: Ruckas

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