heartache

Emotional Jesy Nelson’s fresh heartache as twin daughters suffer health setback after ‘bittersweet’ SMA campaign victory

JESY Nelson says she “can’t stop crying” over her “bittersweet” victory to test all babies in England with SMA – knowing it came too late for her twin daughters.

The groundbreaking rule change comes as the former Little Mix star faces fresh heartache over her one-year-old kids, Ocean Jade and Story Monroe, whose latest test results sparked concern following treatment for the muscle-wasting disease.

Little Mix star Jesy Nelson faces fresh heartache over her one-year-old kids Credit: Shutterstock Editorial
Jesy’s twins Ocean and Story have Spinal Muscular Atrophy Type 1 Credit: Instagram/Jesynelson

It’s feared the girls will never be able to walk after a late diagnosis of the life-threatening condition Spinal Muscular Atrophy Type 1.

In her new Prime Video show, Jesy Nelson: Life Changing, the singer breaks down in tears over the guilt she carries and worries her children will blame her, when they’re older, for not spotting the signs sooner.

Jesy told The Sun: “I know it’s not my fault, but when I watch back videos of when I brought them home and they were kicking their legs, I realise now that over the course of a month, they just stopped.

“That’s the part where the guilt kicks in because I don’t understand how I didn’t see that. Why didn’t I spot that?

HELL & BACK

I had first look at Jesy Nelson’s new doc… watching her break apart stunned me


TEST WIN

Victory for Jesy Nelson as all babies to get free tests for muscle wasting disease

“But when I left the neonatal ward, I was constantly told to check their temperature, make sure you’re monitoring their breathing and there was so much other stuff that I was looking out for because they were premature babies.

“I just honestly didn’t focus on the movement of their legs.

“Thank God for my mum, because God knows what position I would have been in if she hadn’t spotted it.

“That will probably never leave me. I’ll be honest, I don’t think it ever will. But I really hope as they get older, they understand how flipping amazing they are because they are the most resilient little girls I’ve ever known.

It is feared Jesy’s girls will never be able to walk Credit: Instagram/JesyNelson
Jesy Nelson: Life Changing documentary features the singer revealing her guilt over her twins’ health issues Credit: Amazon

“I’m literally in awe of them. Even with what they have to endure every day, they are the happiest babies.”

At Ocean and Story’s most recent three-month review at St Ormond Street’s Children’s Hospital, doctors warned Jesy the girls were not responding to treatment the way they had hoped.

She said: “Unfortunately, some of the numbers have gone down. We had a long discussion and there’s a possibility they may have to go back on treatment, which is just heartbreaking.

“I constantly battle between manifesting they’re going to defy the odds and trying to come to accept that that may not happen.

“It’s a really weird position to be in because you you think ‘well, if that doesn’t happen, am I just going to feel heartbroken for the rest of my life?’

“Then you worry, if I accept it, am I also manifesting that?”

She added: “I don’t ever want them to feel any less than or feel like it defines them. I really want them to know how special they are.

“I want this to be their little superpower.”

Speaking candidly, Jesy admits the success of her campaign for a breakthrough rule change – adding screening for spinal muscular atrophy to the NHS‘s newborn blood spot test – was a tough pill to swallow.

Every year 50 babies born with the condition will now find out they carry the genetic condition at birth. It means they can be given treatment before nerves and muscles are damaged beyond repair.

Jesy said: “I’ve not stopped crying, I don’t know what’s wrong with me. I just keep going through waves of emotions. I’ve had an outpouring of messages from families within the SMA community.

“It’s just a real weird one because obviously there’s a lot of mixed emotions. I think for people dealing with children that have got SMA, who got diagnosed too late, feel it’s almost a bit bittersweet.

Jesy with Little Mix’s Leigh-Anne Pinnock (far left), Jade Thirlwall (left) and Perrie Edwards (far right) Credit: Getty
Jesy’s new Prime Video documentary is released on Friday July 17 Credit: Shutterstock Editorial

“It’s a tough pill to swallow to know that, yes, this change is amazing and I really don’t want to take anything away from it, but if only this had been here for our children.

“It’s just sad because so many families have campaigned about this for years.

“So yeah I’ve going through a real mix of emotions, but ultimately I am super proud. I’m ridiculously proud and cannot wait until our children are old enough to tell them they’ve played a massive part in change.”

Her new Prime Video doc is released on Friday, July 17.

The 60-minute episode shows the moment Jesy finds out her daughters’ diagnosis and her grit and determination to launch her campaign.

While a phased rollout will begin in October 2026, Jesy’s fight continues to raise awareness of the condition because the screening won’t be available in other parts of the UK.

“I hope as many people as possible see the documentary because I wanted to raise as much awareness as I could about it and the signs to look out for.

“As amazing as the rollout is, Northern Ireland and Wales are still not part of the heel-prick test, meaning many babies will still be undiagnosed and not treated in time.

“I’m just praying that if they watch this documentary, they will spot the signs early enough, take them to the doctor and get them treatment.”

  • Jesy Nelson: Life Changing will be available exclusively on Prime Video on July 17.

Spinal Muscular Atrophy: Signs and symptoms

Spinal muscular atrophy is a disease which takes away a persons strength and it causes problems by disrupting the motor nerve cells in the spinal cord.

This causes an individual to lose the ability to walk, eat and breathe.

There are four types of SMA – which are based on age.

  • Type 1 is diagnosed within the first six months of life and is usually fatal.
  • Type 2 is diagnosed after six months of age.
  • Type 3 is diagnosed after 18 months of age and may require the individual to use a wheelchair.
  • Type 4 is the rarest form of SMA and usually only surfaces in adulthood.

What are the symptoms?

The symptoms of SMA will depend on which type of condition you have.

But the following are the most common symptoms:

• Floppy or weak arms and legs

• Movement problems – such as difficulty sitting up, crawling or walking

• Twitching or shaking muscles

• Bone and joint problems – such as an unusually curved spine

• Swallowing problems

• Breathing difficulties

However, SMA does not affect a person’s intelligence and it does not cause learning disabilities.

How common is it?

The majority of the time a child can only be born with the condition if both of their parents have a fault gene which causes SMA.

Usually, the parent would not have the condition themselves – they would only act as a carrier.

Statistics show around 1 in every 40 to 60 people is a carrier of the gene which can cause SMA.

If two parents carry the faulty gene there is a 1 in 4 (25 per cent) chance their child will get Spinal muscular atrophy.

It affects around 1 in 11,000 babies.

Source link

Angels top 2025 draft pick Tyler Bremner endures amid heartache

“It just means more” is a fine slogan. When it comes to the baseball draft, however, the Southeastern Conference can take a back seat to our oceanfront pitching factory.

First pitcher selected in last year’s draft: Tyler Bremner, UC Santa Barbara, taken second overall by the Angels.

First pitcher selected in this year’s draft: Jackson Flora, UC Santa Barbara, taken fourth overall by the San Francisco Giants.

Bremner followed the first round of Saturday’s draft from an airplane, watching from the screen on the back of the seat in front of him.

“It was cool to see someone I knew get picked that high,” Bremner said. “He’s stoked.”

Under former general manager Perry Minasian, college players would be stoked to be drafted by the Angels, who did not hesitate to promote top prospects to the major leagues after the briefest of stints in the minor leagues.

American League catcher Nathan Flewelling greets pitcher Tyler Bremner during the MLB All-Star Futures game.

American League catcher Nathan Flewelling greets American League pitcher Tyler Bremner, left, during the MLB All-Star Futures game on Sunday in Philadelphia.

(Chris Szagola / Associated Press)

Bremner has yet to rise above Class A, but he did participate in Sunday’s Futures Game. He retired the only batter he faced.

The pitchers the Angels might well have taken in place of him, Kade Anderson and Seth Hernandez, each pitched a scoreless inning in the Futures Game.

After the Angels drafted Bremner with the second pick, the Seattle Mariners selected Anderson, an LSU product considered the most polished pitcher available. Anderson is 8-1 with a 1.36 ERA at double-A, likely the next man up should the Mariners’ rotation need one.

The Mariners had alerted him after the first pick — infielder Eli Willits, by the Washington Nationals — that they would take him with the third, he said.

“I got to watch the Angels make their pick, and then it was my turn,” Anderson said. “I never talked to them.”

Anderson signed for $8.8 million, Bremner for $7.7 million. Under Minasian, the Angels chose to spend less on the first-round pick and spread the savings among players drafted in lower rounds.

The first high school pitcher selected last year, Seth Hernandez, played at Corona High, about 20 miles from Angel Stadium. Hernandez is 6-foot-1 with a 2.61 ERA at Class A for the Pittsburgh Pirates, with 111 strikeouts in 69 innings.

He said he had talked with the Angels but did not expect them to select him because he “knew what direction they were going.” (Translation: trying to save money in the first round.)

“It would have been cool to go there,” Hernandez said, “but I’m happy with where I’m at with the Pirates.”

Whatever success the Angels might have in developing players drafted in the lower rounds, their 2025 draft will be remembered for this: They had their choice of any pitcher in America, and they chose Bremner.

Today, the league website ranks Anderson and Hernandez as the game’s top pitching prospects, and among the top six overall. Bremner ranks 44th overall, the only Angels prospect among the top 100.

His season started well, with a 1.08 ERA over five starts. He then missed a month because of illness and arm fatigue. Since his return, he has a 5.63 ERA over six starts.

The 48 strikeouts over 34 total innings is good news. The 34 innings to this point means his season grade can only be marked as incomplete.

“I’m just trying to stay on the field the rest of the year,” Bremner said. “That’s the main goal.

“I think it all comes down to how I perform and how I execute. They gave me all the opportunity in the world this year.”

In addition to adjusting to the first season of his professional career, Bremner is playing his first full season without his mother, who died from breast cancer last June.

“I feel like I am still dealing with that a good amount,” he said.

“It’s not something that gets brought up too much. I don’t want to say people move on, but it has been a year, and people start looking toward the next thing. That’s just how life moves.

“It’s still on my mind a lot. I’m trying to focus on what I need to be focusing on, and that’s being present and competing and having success in the sport. It’s my job right now. It’s not easy, but I’m getting through it.”

Same, really, for his pitching.

In a year in which three of the starters in the Angels’ opening rotation have been (a) injured; (b) demoted; or c) demoted and recalled, it’s hard not to imagine that a healthy and productive Bremner might have made the majors by now.

“I think about it sometimes,” he said, “but I’m content: not really contentment with where I’m at, but content going day to day and figuring out the process as I go through it.

“You can’t really think about getting to the big leagues before going through the other steps. Just kind of enjoying where I’m at right now, and realizing I need to have success here to make it there.

“You can’t just expect it to be handed to you. That’s something they made clear to me: It’s not going to be handed to me. It needs to be earned. I think I have a little ways to go, but I’m confident I can get there.”

He is confident, too, that Santa Barbara was an optimal launching pad toward getting him there.

“They develop pitchers well,” he said. “It’s a good location. It’s a fun school. I can’t say enough about my time there.

“Playing a lot of guys who have played in those big stadiums and in those big settings — Omaha, whatever — you do realize it’s the same game once you get here. It’s an even playing field. I feel like I fit in just fine.”

He should. The number of Cy Young winners this decade from the SEC is the same as the number from UCSB: one.

Source link