milestone

Behind the scenes of a milestone Make-A-Wish experience with Dodgers

Kaylyn “KK” Alves had been talking all day about her favorite moment in any Dodgers game: when Teoscar Hernández greets his teammates at the entrance to the dugout with a shower of sunflower seeds after a home run.

KK, 14, could name Hernández’s favorite flavor of seeds — ranch — and had thought through the potential downsides of throwing flavored seeds instead of original — the seasoning posed a risk for the eyes.

So, when Hernández met KK on the field Tuesday before the Dodgers’ game against the Mets, he had a suggestion for a pregame activity.

“Do you want to be part of the celebration?” he asked, gesturing toward the dugout. “Come on, let’s go.”

KK, her parents and her sister visited Dodger Stadium this week for an experience coordinated by the Make-A-Wish Foundation of America. KK, who was diagnosed with epilepsy at the age of two, is an avid Dodgers fan from Northern California.

Those at the game Tuesday saw her throw out the first pitch to Freddie Freeman, her favorite player. In addition to the sunflower seed celebration with Hernández, KK’s wish — the 1,000th granted since Make-A-Wish and Fanatics partnered in 2023 — included a tour, field passes for batting practice, and extra time with Freeman before the game.

Kaylyn “KK” Alves throws out the first pitch before Tuesday's game against the New York Mets at Dodger Stadium.

Kaylyn “KK” Alves throws out the first pitch before Tuesday’s game against the New York Mets at Dodger Stadium.

(Gary A. Vasquez / Los Angeles Dodgers)

“To see my kid meet her hero, basically — it’s indescribable,” said KK’s father, David.

KK inherited her Dodgers fandom from her dad, who was originally an A’s fan but made the switch when infielder Max Muncy did. It became a family passion.

David watched KK light up when they walked out to the field Tuesday and spotted Freeman going through his ground ball routine. And the day kept getting better. Freeman walked over and gifted KK a jersey with his number and her name on the back.

“It was amazing,” KK said. “He’s the sweetest.”

Freeman then led the family to the media room and took a seat next to KK at the podium. She asked him about his growing family — Freeman and his wife Chelsea have three sons and announced in March that they are expecting a baby girl.

Kaylyn “KK” Alves prepares to throw sunflower seeds with Dodgers' Teoscar Hernández to mimic the team's home run celebration.

Kaylyn “KK” Alves prepares to throw sunflower seeds with Dodgers left fielder Teoscar Hernández to mimic the team’s home run celebration before Tuesday’s game at Dodger Stadium.

(Gary A. Vasquez / Los Angeles Dodgers)

Freeman asked KK about her interests. She grew steadily more talkative, nerves subsiding, as they talked about puzzles and video games. She even ran her thoughts on the seed celebration by Freeman.

“I’ve had sunflower seeds go all the way down my back, and into my shirt, and it’s quite uncomfortable,” Freeman said. “But if you’ve got sunflower seeds down your shirt, it means you’ve hit a home run, so you can take it.”

An hour and a half later, KK experienced just that, walking through a shower of sunflower seeds thrown by Hernández. Then they traded places and she returned the favor, both smiling ear to ear.

Source link

Jesy Nelson admits SMA update is ‘bittersweet’ despite celebrating major campaign milestone

JESY Nelson has admitted the SMA update is “bittersweet” as she insisted “there’s still so much more to do” as she continues her campaign.

The singer has campaigned for all newborn babies to be screened for SMA after her twins, Ocean Jade and Story Monroe, were diagnosed with the rare condition which causes progressive muscle wastage.

Jesy Nelson said the SMA update is ‘bittersweet’ despite the major campaign milestoneCredit: Instagram / jesynelson
The singer’s twin daughters were diagnosed with a rare condition – which causes progressive muscle wastage.Credit: Instagram

Jesy has previously said it is unlikely they will ever walk and tragically may not live to the age of two.

The 34-year-old launched a petition for more health checks for babies, with it reaching almost 150,000 signatures.

In a letter addressed to Jesy and Giles Lomax, the chief executive of the charity SMA UK, Health Secretary Wes Streeting confirmed that screenings will be rolled out earlier than planned.

Now, they will begin as part of in-screening evaluations (ISE) from October 2026 instead of January 2027.

‘MILESTONE’

Victory for Jesy Nelson as newborns to be screened for life-changing condition


Brave battle

Jesy Nelson shares cryptic quote about ‘storms’ amid baby twins’ SMA diagnosis

Jesy took to Instagram with a new clip as she explained that it was a “proud moment” but said there was still a long way to go.

She said: “Hi guys, I just wanted to come on here to share some information I’ve heard over the last couple of days.

“As you know I’ve been campaigning to try and get SMA as part of the newborn screening here in England.

“My girls were diagnosed with SMA type 1 – unfortunately they weren’t tested at birth because it weren’t here in England.

“But they have now decided to roll that out in October for all babies in England to be tested at birth for SMA, which is absolutely incredible.

“I know it’s a really big moment for the SMA community because this has been going on for years, trying to get this passed.

“It’s a real proud moment but at the same time it’s a bit bittersweet because they are only doing it in certain areas of England.

“So if you do not live in that certain postcode of England then your baby won’t be tested for SMA, which is really sad and it’s essentially postcode lottery for your baby which should not be the case, all babies lives matter.

“As amazing as it is, there is a long way to go in terms of that, so I’m going to keep pushing and trying as much as possible to get this in all areas in England.

“Also, the petition that all of you signed and get the 100,000 signatures, is now going to be debated in parliament is amazing.

Jesy said that it was a ‘proud moment’ but said there was still a long way to goCredit: Instagram

“That’s all down to you guys, you are all incredible.

“I just want to say that I am so appreciative of all the support and love and messages.”

She wrote in the caption: “I wanted to update you all on something very close to my heart…

“SMA screening is now set to start earlier, from October 2026 instead of 2027 which is such a huge step forward for early diagnosis and the SMA community.

“It’ll be rolled out in selected areas first, so while this is real progress there’s still so much more to do. We need to keep pushing to make sure every baby has the opportunity to have this heel prick test at birth.

“Also… the petition YOU all supported has reached the stage for a parliamentary debate which means even more awareness where it matters most.

“I truly am grateful for all your support not only for me and my girls, but for everyone in the SMA community… We’re getting closer. Love you all.”

It is believed that more than 400,000 newborns will benefit from the move.

But 163,000 newborns will remain untested so they can act as a control group to compare outcomes.

This has been branded by experts as “unethical” and means that an estimated 11 babies a year will still be diagnosed too late.

ISE is used to test proposed new screening programmes or changes to existing programmes before being adopted nationally.

SMA is a rare but devastating degenerative condition, affecting around one in 14,000 babies, with the majority being type 1 which affects babies less than 6 months old. 

Common symptoms include muscle weakness, such as floppy or weak arms and legs, movement problems, problems with breathing or swallowing, tremors and bone and joint issues that can lead to spine curvature. 

 Most types of SMA are caused by inherited faulty genes and crucially can be picked up through a heel prick blood test.

Tests, including genetic blood tests, are available before, during and after pregnancy but historically have only been offered to at-risk parents and children. 

Jesy’s twins have since had a one-off infusion that puts a missing gene back into their body to stop other muscles from dying.

However, they will not be able to regain any muscles that have already died.

SMA screening is now set to start earlier, from October 2026 instead of 2027Credit: Prime Video

Source link

Aston Villa: Unai Emery reaches milestone in win over Lille

Villa’s decision to go for Emery four years ago was a sign of their ambition to make a mark on the European stage.

While they are still well placed in fourth position in the English top flight, as they aim to secure a Champions League berth next term, success in the Europa League would also deliver the same outcome.

However, on Thursday it was just about recapturing their rhythm and some confidence after a winless run of four games domestically that included defeats to Newcastle, Chelsea and bottom club Wolves.

Speaking to TNT Sports, returning captain John McGinn suggested that the result had provided Villa with a “building block” and the opportunity to “reset” after a difficult few weeks.

“We needed a reset. The past month has not been great,” he said.

“We can’t dwell on it. We can learn from it but what we need to do is build and this is a building block. We know we can do a lot better but it is a good result.

“We showed signs of getting back to our best but there’s still a long way to go. Sunday is a massive game in the league as well [at third-placed Manchester United] so it is a tough run of fixtures, but that was a good start.

Meanwhile, Emery said he used the struggles of their Premier League rivals in the Champions League as a motivational tool before kick-off.

He said: “We respect this competition because we know the difficulties of each match away from home in Europe.

“We know how it is for the English teams, like this week in the Champions League, how they were struggling.”

Source link