Jesy Nelson

Jesy Nelson fans say they ‘can’t watch’ her Amazon Prime documentary for 1 reason

Jesy Nelson: Life After Little Mix, which is out on Amazon Prime, follows Jesy’s life after she left Little Mix back in 2020, including her reflections on fame, pressure, and her own personal truth about that period

Jesy Nelson’s Amazon Prime Video documentary, which is out today (Friday February 13) is a major new six-part series.

Jesy Nelson: Life After Little Mix follows Jesy’s life after she left Little Mix back in 2020, including her reflections on fame, pressure, and her own personal truth about that period. It’s her most candid account yet of why she departed the group and how she’s processed everything that happened. Another central focus of the documentary is Jesy’s pregnancy with her twin girls, Ocean Jade and Story. The cameras follow the 34-year-old Romford star through what became a high-risk pregnancy including complications like twin-to-twin transfusion syndrome and emergency medical moments.

After the birth is also covered, when Jesy’s daughters were diagnosed with Spinal Muscular Atrophy (SMA) Type 1 — a severe, progressive genetic condition that causes muscle weakness.

Jesy uses the documentary to share her family’s real-time experience with this diagnosis and to raise awareness about it, including campaigning for expanded newborn screening in the NHS.

Besides the physical journey, the Amazon Prime series also revisits her personal and emotional challenges, including struggles with the pressure of fame, mental health battles, and what it’s been like stepping back from one of the UK’s biggest pop acts.

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Many fans have been excited to watch the documentary, however some have confessed online they ‘don’t think they can watch it’ for one reason – that it will leave them too emotional.

One person wrote: “I’m not gonna handle this well I’m already emotional about it.”

While another added: “My heart. I don’t even think I can watch this. I’m already crying.”

A third chimed in: “I’m gonna weep aren’t I,” while a fourth added: “She deserves to tell her side of the story after years of being silent.”

Jesy recently confessed that she considered leaving Little Mix after just two years as she struggled to cope with the pressure and the spotlight after winning The X Factor.

However, she went on to spend a decade in the band before quitting.

Jesy said: “That [leaving] presented itself far before I made that decision.

“There was a time where I was like ‘Oh, I want to leave’ and I remember sitting down with my family… and it was actually because of my brother that in the end I stayed.”

She added: “The first time I wanted to leave I remember I went home and we were kinda weighing up the [pros and cons]… and at that point we weren’t even like at our biggest.

“We were, it had only been like two years, but we were still big. Everyone still knew who Little Mix were so it was like ‘if you leave now, what are you going to do?’”

Speak on the Great Company with Jamie Laing podcast, Jesy also praised her brother for his advice that ultimately kept her in the band and for encouraging her to make as much money as she could off of Little Mix‘s fame.

“My brother was like ‘you are so much stronger than you give yourself credit for and I think you can stick this out for another few years,” she explained.

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Jesy Nelson reveals heart-stopping moment her mum raised the alarm on twins’ SMA struggle after moving to Cornwall

JESY Nelson has described the terrifying moment her mum raised the alarm about her twins’ SMA struggle.

The pop star secretly moved to Cornwall after giving birth to the two little girls following a high-risk pregnancy.

Jesy Nelson with her mum Janice White
Ocean and Story have been diagnosed with SMACredit: Instagram

She says her mum Janice noticed Ocean and Story’s lack of leg movement on a trip to visit them.

Speaking on Jamie Laing’s podcast Great Company with Jesy Nelson, the former Little Mix star said:  “Me and Zion decided we wanted to move to Cornwall because our babies had been through all this trauma, and we just wanted them to grow up in a peaceful setting and just be around the sea and live like a kid.

“I honestly was not even taking notice of their legs because they’re my first set of children, so I don’t know how they should be moving their legs, or what they should and shouldn’t be doing anyway.

“Because we had just moved six hours away, my mum wasn’t with me every day.

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“I think she noticed how much it had deteriorated, and she said, ‘Jesy, they don’t move their legs very much. Have you noticed that?’

“She kept comparing them to my nephew, but I said George was a full time baby and because the twins were premature you can’t compare them.

“She said, ‘I know Jesy, but something’s not right’.

“My mum is such a such a worrier. She worries about everything – a bit like me, she thinks the worst in every situation.

“And so I just thought that was her over-worrying then a week went by, and I remember changing their nappy and just thinking ‘oh, god, they actually don’t move their legs at all’.

“For some reason they just stopped.”

Jesy with her now ex-partner Zion gave birth in May 2025Credit: jesynelson/Instagram

Fearing her mum was right, Jesy booked to see a paediatrician straight away.

After being told the babies needed blood tests and a brain scan, Jesy left the doctors in tears.

She was later told the identical twins have Spinal Muscular Atrophy Type 1 — the most severe form of a rare disease affecting muscle strength and movement.

Jesy is now working tirelessly to raise awareness of SMA and campaigning for the condition to be added to the NHS newborn heel-prick test, which currently screens for ten other conditions.

She spoke to The Sun about the diagnosis and her new new six-part docuseries on Prime Video, which follows her journey into motherhood as she reflects back on her time in Little Mix.

It’s the first time she’s opened up about quitting the band in 2020.

Read our full interview with Jesy about hope of reconciling with her former Little Mix friends and mending her relationship with Simon Cowell here.

  • Jesy Nelson: Life After Little Mix will be aired on Prime Video from February 13.
  • Listen to Great Company with Jesy Nelson whereever you get your podcasts.

Spinal Muscular Atrophy: Signs and symptoms

Spinal muscular atrophy is a disease which takes away a person’s strength and it causes problems by disrupting the motor nerve cells in the spinal cord.

This causes an individual to lose the ability to walk, eat and breathe.

There are four types of SMA – which are based on age.

  • Type 1 is diagnosed within the first six months of life and is usually fatal.
  • Type 2 is diagnosed after six months of age.
  • Type 3 is diagnosed after 18 months of age and may require the individual to use a wheelchair.
  • Type 4 is the rarest form of SMA and usually only surfaces in adulthood.

What are the symptoms?

The symptoms of SMA will depend on which type of condition you have.

But the following are the most common symptoms:

• Floppy or weak arms and legs

• Movement problems – such as difficulty sitting up, crawling or walking

• Twitching or shaking muscles

• Bone and joint problems – such as an unusually curved spine

• Swallowing problems

• Breathing difficulties

However, SMA does not affect a person’s intelligence and it does not cause learning disabilities.

How common is it?

The majority of the time a child can only be born with the condition if both of their parents have a faulty gene which causes SMA.

Usually, the parent would not have the condition themselves – they would only act as a carrier.

Statistics show around 1 in every 40 to 60 people is a carrier of the gene which can cause SMA.

If two parents carry the faulty gene there is a 1 in 4 (25 per cent) chance their child will get spinal muscular atrophy.

It affects around 1 in 11,000 babies.

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Jesy Nelson brands twins SMA diagnosis a ‘matter of life or death’ as she slams repeated GP failures

FORMER Little Mix star Jesy Nelson has spoken candidly about the ‘heartbreaking’ health challenges her twin daughters have faced.

The singer and campaigner has opened up about how her babies, Ocean Jade and Story Monroe, were failed to be diagnosed with Spinal Muscular Atrophy (SMA Type 1) despite numerous consultations with healthcare professionals.

Jesy Nelson opened up about her daughters’ ‘life or death’ diagnosis and GP failuresCredit: Sky
Jesy is campaigning to raise awareness of SMA and campaigning for the condition to be added to the NHS newborn heel-prick testCredit: Sky

In an interview on Sky News’ The UK Tonight programme, the former girl band star admitted that the condition was only picked up on when they were six months old – by her mum.

Although health visitors and GPs performed regular checks, the early symptoms of the rare genetic disease – specifically a lack of leg movement – went unnoticed.

The 34-year-old teared up as she explained her campaign for the UK to include SMA screening in the routine newborn heel prick test.

Speaking to host Sarah-Jane Mee, she said: “People are starting to take notice and take it seriously, but it never should have took for me to come along for it to be taken seriously and that’s the part that makes me feel so angry.

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“This isn’t just anything. This is a matter of life or death for someone’s child and who gets to decide that?

“Who has the right to decide whether my child is going to be in a wheelchair or not when we’ve literally had three life-changing treatments since 2018?

“The fact that it’s still a thing and we’re still having to scream and shout about it is just mad to me.”

She promised: “I will not stop on my socials talking about it. Trying to do as much TV… yes, it’s big but there’ll still be lots of other people that don’t know about this, so I’ve got to stay noisy.

Following a conversation with UK Health Secretary Wes Streeting, she admitted: “It is so difficult… it’s like, yes, I had that open and honest conversation with you and you said all the right things, but what are you going to do now?

“Now that I’m not in front of you, are you going to continue?”

She reflected on the missed opportunities during early check-ups and urged: “The fact that there were healthcare visitors around my house a lot and we took them to the GP and not one of them saw any of the signs.

“Thank God for my mum, because I dread to think what position I’d be in now if my mum hadn’t have said anything to me.

“It’s one of them things that I constantly go over and I have to sometimes stop myself from doing it because I will drive myself insane.”

Jesy added that the painful diagnosis has changed her outlook for her daughters’ future.

She said: “I don’t want people to think that if you’ve got disability that that defines you because it definitely doesn’t.

“But I’ll openly say if I could have it the other way, I definitely would. Why wouldn’t I want my children to walk and live a fulfilled life?

“I just pray that it does get changed and it does become part of the heel prick test, because the amount of heartbreak and hurt that I’ve had to endure, I’ll never be able to explain it.”

The Boyz hitmaker was previously diagnosed with twin-to-twin transfusion syndrome (TTTS).

The high-risk pregnancy included a 10-week hospital stay and life-saving emergency surgery.

The Brit Award-winner has launched a petition to force the Government to enforce a non- invasive £4 blood test at birth.

Symptoms of SMA depend on which type of condition, but the most common include floppy or weak arms and legs, as well as swallowing and breathing problems.

If untreated, the life expectancy of a baby with SMA Type 1 is two years and intervention is ­considered critical in limiting long-term impacts.

It could help avoid 33 babies a year left needing a wheelchair for life.

The former Little Mix star has had a tough time after she split from her fiance Zion Foster.

Jesy and Zion first began dating in 2022 after years of friendship.

In January 2025 they announced they were expecting identical twins.

The couple parted ways following the birth of their twin daughters, but remain close as co-parents.

Jesy spoke to Sky News about the twins’ health battleCredit: Sky
Ocean and Story have Spinal Muscular Atrophy Type 1 — the most severe form of a rare diseaseCredit: Instagram/Jesynelson
The couple parted ways following the birth of their twin daughtersCredit: jesynelson/Instagram

Spinal Muscular Atrophy: Signs and symptoms

Spinal muscular atrophy is a disease which takes away a person’s strength and it causes problems by disrupting the motor nerve cells in the spinal cord.

This causes an individual to lose the ability to walk, eat and breathe.

There are four types of SMA – which are based on age.

  • Type 1 is diagnosed within the first six months of life and is usually fatal.
  • Type 2 is diagnosed after six months of age.
  • Type 3 is diagnosed after 18 months of age and may require the individual to use a wheelchair.
  • Type 4 is the rarest form of SMA and usually only surfaces in adulthood.

What are the symptoms?

The symptoms of SMA will depend on which type of condition you have.

But the following are the most common symptoms:

• Floppy or weak arms and legs

• Movement problems – such as difficulty sitting up, crawling or walking

• Twitching or shaking muscles

• Bone and joint problems – such as an unusually curved spine

• Swallowing problems

• Breathing difficulties

However, SMA does not affect a person’s intelligence and it does not cause learning disabilities.

How common is it?

The majority of the time a child can only be born with the condition if both of their parents have a faulty gene which causes SMA.

Usually, the parent would not have the condition themselves – they would only act as a carrier.

Statistics show around 1 in every 40 to 60 people is a carrier of the gene which can cause SMA.

If two parents carry the faulty gene there is a 1 in 4 (25 per cent) chance their child will get spinal muscular atrophy.

It affects around 1 in 11,000 babies.

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