disease

Valerie Perrine, the Las Vegas showgirl turned Oscar-nominated actor best known for playing Lenny Bruce’s wayward wife Honey Harlow in “Lenny” and Lex Luthor’s secretary Eve Teschmacher in the 1978 and 1980 “Superman” films, died Monday morning. She was 82.

Perrine’s death was confirmed by Stacey Souther, her close friend and the director of the 2019 documentary “Valerie,” which followed the star’s debilitating battle with Parkinson’s disease.

“It is with deep sadness that I share the heartbreaking news that Valerie has passed away,” Souther announced on social media. “She faced Parkinson’s disease with incredible courage and compassion, never once complaining. She was a true inspiration who lived life to the fullest — and what a magnificent life it was. The world feels less beautiful without her in it.

“I love you, Valerie. I’ll see you on the other side.”

Souther also shared a GoFundMe link and a note that Perrine’s final wish was to be laid to rest at the Hollywood Hills Forest Lawn Cemetery. “After more than 15 years of fighting Parkinson’s, her finances are exhausted.”

Perrine was born Sept. 3, 1943, in Galveston, Texas, to parents Renee and Kenneth, a dancer and a U.S. Army lieutenant colonel. A military brat growing up, Perrine moved frequently and spent time in Japan, Paris and Scottsdale, Ariz.

She attended the University of Arizona, but her academic aspirations were short-lived. She skipped town, trading her textbooks for a feather headdress and G-string in Las Vegas. Soon she was a lead dancer in the star-spangled Lido de Paris show at the Stardust Hotel. She told the New York Times in 1974 that she spent some of her $800 weekly paycheck on experimenting with drugs: acid, mescaline, peyote, cocaine — you name it, she tried it.

Eight years after her foray into Vegas showbiz, her movie career kicked off unexpectedly during a visit to Hollywood. An agent at a friend’s dinner party took a liking to her, she told the Los Angeles Times in 2013. He asked if she had any publicity photos. The only one she had was in her topless Lido costume.

The sexy picture made its way to the desk of Monique James, the head of new talent at Universal. “She called me in and asked if I had ever acted before and I said ‘no,’” Perrine said. “She arranged a screen test.”

Paul Monash, the producer of “Slaughterhouse-Five,” which was based on Kurt Vonnegut’s acclaimed novel about World War II and time travel, directed the screen test. “They told me to wear a bikini because they wanted to see what my body looked like. I didn’t have a bikini. I wore my G-string and that was it.”

“I had been working in Vegas all the time and had been on the beach in St. Tropez, so being [naked] didn’t mean anything to me,” she told The Times. “It was my attitude that sparked his interest and the way I read the line, ‘Oh, you’re a moon child.’ He hired me.”

Dustin Hoffman as Lenny Bruce, left, and Valerie Perrine as Honey Harlow in a scene from the 1974 movie, “Lenny.”

(United Archives via Getty Images)

Soon after, she portrayed the love interest of NASCAR driver Junior Johnson opposite Jeff Bridges in the 1973 sports drama “The Last American Hero.” Perrine and Bridges dated briefly while working on the film. The same year she became the first woman to bare her breasts on television in the PBS telefilm “Steambath.”

Bridges described Perrine in the 2019 documentary “Valerie” as having a “real sense of fun and play.”

“She was excited about life and excited where she was and it’s a contagious feeling,” he said. “Growing up in a military family and traveling all over the world made her a really interesting person and as an actress, she had the ability to bring all of that into her performances.”

In 1974, she tapped into her showgirl background to portray the drug-addled stripper Honey Harlow opposite Dustin Hoffman as Lenny Bruce in the biopic “Lenny.” Her performance garnered rave reviews. She nabbed the lead actress award at the Cannes Film Festival, BAFTA named her most promising newcomer and she was nominated for an Oscar.

Perrine was perhaps best known for her portrayal of Eve Teschmacher, Lex Luthor’s secretary and love interest in the 1978 “Superman” starring Christopher Reeve, Gene Hackman and Marlon Brando. She played the role again in 1980’s “Superman II.”

She also starred in the 1980 disco flick “Can’t Stop the Music” alongside the Village People and Caitlyn Jenner. The movie flopped and Perrine was so mortified by the film’s poor reception that she moved to Europe. She didn’t officially retire from acting until around 2010, and by 2015 she had gone public with her Parkinson’s disease diagnosis.

The 2019 documentary short “Valerie,” directed by Souther, dropped the veil on Perrine’s battle with the illness, with her loss of bodily autonomy captured in the film. She said “the shakes” caused her to struggle and the level of care she required made her feel like a baby.

Still intact, though, were her sharp wit and self-deprecating sense of humor. In the film a doctor explains that there are times when physicians aren’t able to pin down a diagnosis or there are multiple diagnoses.

“The doctors don’t know what’s going on with me,” Perrine says. “They can’t figure it out.”

“What do you think it is?” the doctor asks Perrine.

“Karma,” she quips.

Neil Sedaka, the singer and songwriter whose signature hits include “Calendar Girl” and “Breaking Up Is Hard to Do,” died of atherosclerotic cardiovascular disease.

The condition is caused by the buildup of plaque — meaning fats, cholesterol and other substances — in and on the artery walls, which can lead to events such as heart attacks, strokes and aneurysms. According to the American Heart Assn., atherosclerotic cardiovascular disease is the leading cause of death worldwide.

The musician’s death certificate, published Wednesday by the New York Post, also listed kidney failure as a contributing factor.

Sedaka died Feb. 27 in Los Angeles at age 86. The songwriter’s family previously told The Times that his death was sudden.

“Our family is devastated by the sudden passing of our beloved husband, father and grandfather, Neil Sedaka,” their statement read. “A true rock and roll legend, an inspiration to millions, but most importantly, at least to those of us who were lucky enough to know him, an incredible human being who will be deeply missed.”

Born and raised in Brooklyn, N.Y., Sedaka was a Juilliard-trained classical pianist who translated his skill to pop stardom in the 1960s. His popularity as a performer waxed and waned over the years, but he maintained a steady career writing hits for other artists for decades, collaborating with lyricists such as Howard Greenfield.

“Songwriting is a difficult undertaking that gets harder and harder because you have to top your past work,” Sedaka told The Times in 1996. “You have to keep proving yourself. … It’s wonderful to sing ‘Calendar Girl’ and ‘Breaking Up Is Hard to Do,’ but you need more than that. You have to break new ground. As an artist, I have to choose what I feel is good and hope that the public will go along with it.”

Sedaka is survived by his wife Leba; children Dara and Marc; and three grandchildren.

When Zyw was diagnosed with MND, he was working as a sommelier and wine buyer in London. His first symptom was his left thumb going numb.

Initially misdiagnosed as carpal tunnel syndrome, Zyw “had no reason to think about this impossible, improbable diagnosis at the time”.

A third of those diagnosed with the devastating disease die within a year, half die within two. Zyw is one of the “lucky ones”.

While his disease has progressed slowly, he has now lost most of the functionality in his hands, and the muscles in his upper body are wasting away.

A return to snowboarding was one of the positives in the dark aftermath of his diagnosis.

Having learned to snowboard as a child on a dry slope in Edinburgh, he competed as a freestyler into his early 20s before a knee injury put paid to that.

“I learned very quickly that the only aspect of this diagnosis in my control is my attitude towards it,” he added.

“I couldn’t affect how quickly the disease was going to manifest itself, how quickly I was going to fall off a cliff, how quickly I was going to lose motor functions.

“When I held on to that positive message, every day became easier and that’s what I’ve done every day since.”

The Davy Zyw Fan Club has been out in full force at the Games, flying British and Scottish flags and donning blue beanies emblazoned with his surname to watch him in action.

On a bus up to the snowboard park, an impromptu chant of “No Davy, No Party” sounded out, renditions of which carried on throughout the day.

Among those singing course-side were Zyw’s wife Yvie and four-year-old son Aleksander, who was “shouting his head off in celebration and admiration” as his daddy whizzed past during the opening run.

That race, however, did not end as he had hoped – in hospital with two broken ribs after a heavy crash, having already injured his knee in official training.

Such is the pain from his broken ribs, he cannot laugh nor sneeze but nothing was going to stop him being back in the start gate for Friday’s banked slalom.

In that, he finished 19th – but that is irrelevant. This Paralympic experience was never about the medals or results.

“Two years ago I wouldn’t have been classifiable as a Para-athlete and in two years’ time I’m not going to be a competitive snowboarder,” he said.

“So I’m in this sort of tragic period of my diagnosis where I’m ill enough to be classified as a Para-athlete, but well enough to still be able to rip down on my snowboard.

“I’m grateful for the fact that the Games have come at this moment, because in a few years’ time it wouldn’t have been possible.”

ACTRESS Daisy Edgar-Jones has spoken about a crippling health diagnosis – and going through ‘years of unexplained pain’.

The Normal People star, 27, opened up for the first time about suffering from a chronic disease.

The Golden Globe-nominated star told Vogue in a YouTube video: “I have endometriosis, so my hormones are kind of all over the place.

“I had extremely bad acne for most of my teenage years.

“When I had terrible acne, it was all I could see when I looked in the mirror.”

The Twisters star added: “For so long, I had such painful periods and really volatile skin.

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“I was diagnosed when I was, I think I was 24. I was definitely relieved to find out why I was going through it.”

The chronic disease causes inflammation, scarring and – in many cases – excruciating pain.

According to the NHS, it affects around one in ten women of reproductive age in the UK – an estimated 1.5 million people – and there is no cure.

Daisy, who is in a relationship with photographer Ben Seed, said she has found ways to manage the condition’s hormonal effects through diet and skincare.

She explained: “I’ve found over the years skincare that really works for me.

“But I also find drinking lots of water and when I eat well – especially when I try and not eat as much dairy – that really helps.”

She also offered a heartfelt message to others struggling with breakouts.

“When I had terrible acne, it was all I could see when I looked in the mirror.

“But actually when I look back at photos and videos, it’s funny that so much of the beauty of you is inside and the confidence that you wear can really help.

“So I would say to anyone with acne – I know it’s all you can see, but it’s not what everyone else can see.”

The actress was born in Islington, North London, and grew up in the world of entertainment.

Her dad Phil is head of entertainment at Sky TV while her mum Wendy is a former film editor.

The actress was catapulted to fame thanks to her debut lead role in BBC lockdown smash-hit Normal People, alongside Paul Mescal.

The Bafta and Golden Globe-nominated actress trained with the National Youth Theatre from the age of 14 before landing her first professional job at 17, appearing in a Christmas special of BBC sitcom Outnumbered.

Daisy then joined the cast of Cold Feet as Olivia, the on-screen daughter of actress Hermione Norris – shortly before starring in the raunchy drama Normal People, an adaptation of the best-selling Sally Rooney novel.

THE Bachelor Australia star Megan Marx has given an update on her battle with a degenerative brain condition that has left her “grieving” her “unlived life”.

Megan, 36, was diagnosed with rare Spinocerebellar ataxia in 2023 which targets the part of the brain that controls coordination as well as the spinal cord.

There’s currently no cure for the disease, which affects one to five people in every 100,000 and can impact vision, speech and mobility.

In an essay for Mamamia, Megan wrote: “There is a kind of grief that rarely earns a name. It is not the grief of death, nor even the grief that follows a diagnosis. It is the grief of the life we imagined we might live, and the slow recognition that it will not arrive.”

The reality star said the ever-widening gap between her new reality of survival and the hopes and dreams she harboured should be mourned in a bid to stop feelings of shame developing.

She wrote: “The grief of what-if is often waved away. Be realistic, we’re told. Accept what is. But denial carries its own risk.

“If regret is untreated, if it hardens into identity, it becomes corrosive. It ceases to be grief and becomes a creed. That is where the damage quietly deepens.

“Pretending nothing was lost binds us to shame; naming it allows movement. It challenges the belief that worth is measured by productivity, consistency, or visibility. Survival, when understood honestly, is not failure; it is a form of adaptation.”

Megan said she’s stripped away all unnecessary elements of her life to focus on what she can still do.

She remains active, spending time outdoors when she can, camping, windsurfing and walking her dog on the beach.

Creative activities also feed her soul, from playing the guitar to painting and reading and allow her a certain structure.

The star had an important message for other people living with chronic illnesses: “do not let your grief be dismissed.”

She continued: “Do not bypass it for the comfort of others. Mourn what was lost, but remember what is still left of your life. In doing so, you clear space not for fantasy, but for a life that is honest, inhabitable, and still your own.”

Heartbreakingly, Megan said the day will come when she will no longer be able to talk, walk, or swallow.

She also laments how experimental therapies that could help her condition, like stem cell treatments, are far removed from what she can afford.

Despite this, she has ruled out ever crowdfunding.

Selflessly, she wrote: “I am acutely aware that there are people whose need is far more immediate than mine.”

Megan found fame on The Bachelor in 2016, becoming the first contestant to refuse a rose when offered by Richie Strahan.

She said the situation didn’t feel right and she went on to form a relationship with fellow female contestant Tiffany Scanlon.

Speaking afterwards, she said: “I got along with Richie really well, we had great banter… but for me, it was more the environment of the show that wasn’t very conducive to love.”

Following The Bachelor, she appeared on Bachelor in Paradise and The Challenge Australia.

Tayari Jones was feeling intense pressure to deliver a follow-up to her 2018 bestseller, “An American Marriage.” She was three years past her publisher’s deadline. Worse, she had begun to suffer symptoms of what was ultimately diagnosed as Graves’ disease, a serious autoimmune condition that attacks the thyroid. At the time she didn’t know what was causing pain in her right leg and the intense itching on her arms, legs and torso — or why her handwriting had “gone funky.” Meanwhile, 200 pages in, the novel she owed Knopf Publisher and Editor in Chief Jordan Pavlin wasn’t coming together.

She confided to a close friend, “This book got me feeling like a clown right now.” Jones began to doubt that she was ‘worthy’ of another literary success.

“You know how musicians say ‘that band was swinging’? I wasn’t swinging,” Jones, who lives in Atlanta, tells me during a recent phone call.

She says she turned to an empty notebook, and began word doodling — scrawling random words, going wherever her pen took her. “Kin,” the magnificent novel that emerged, is out now. Oprah recently announced that it’s her latest book club pick (the second time Jones has been honored with the selection).

“Kin: A Novel” by Tayari Jones

(Knopf)

“Kin” was supposed to have been an entirely different book — an of-the-moment novel about gentrification in the New South — but what materialized from Jones’ creative experiment was a tiny Louisiana town called Honeysuckle, amid the 1950s and Jim Crow. Then, as Jones puts it, “Annie and Vernice [her main characters] introduced themselves.” All of Jones’ previous fiction has been contemporary, and at first she didn’t know what to make of the path Annie and Vernice were leading her on. “I don’t write historical,” observes Jones, “I’m a writer of my own era.” Not to mention she’d always been suspicious of writers who claim their characters came to them fully realized.

Even at that point, Jones still believed Vernice and Annie might just be part of a larger backstory, perhaps parents to protagonists she had yet to conjure. “So I stuck with it to find out.” The more she wrote, the more the puzzle pieces began to fit together. Annie’s journey out of Louisiana takes her through a sharecropping brothel in Mississippi, then on to Memphis where she is convinced she will find and reunite with her mother. Meanwhile, Vernice attends Spelman (the HBCU Jones is a ’91 graduate of).

Jones began to suspect that she’d had a previously undetected ulterior motive for moving her book to the past. She wondered if “Kin” was actually an effort to better understand her parents, particularly her mother, a former economist who’d been active in the civil rights movement. “My mother is a very tight-lipped person,” Jones says. “I knew very little about her life, and maybe this was my imagination trying to crack the code.”

Jones’ progress wasn’t without its setbacks. She was deep into the writing of “Kin” when her Graves’ disease flared in earnest. Her blood pressure spiked. She got winded just climbing the stairs to her bedroom. She landed in the emergency room with a life-threatening “thyroid storm,” requiring surgery and daily medication. Then her eyesight deteriorated, which necessitated a month of radiation. But she powered through, and sent off the manuscript.

Jones’ editor, Pavlin, admits the novel she received was a surprise. “But it was as perfect a novel as I’ve ever read,” she says. “No publisher in their right mind would stand on anything as insignificant as a contractual description in the face of such a work.”

“Kin” deftly alternates points of view between Vernice and Annie, narrating events by way of a vernacular that would be at home on a front porch rocking chair. When Annie takes a job at a nightclub in Memphis, she says of its penny-pinching owner: “The man was tight as a skeeter’s teeter.” Jones is equally adept at the delicate prose, as in this description of a well-worn family Bible: “The paper, thin as butterfly wings, was heavy with wisdom.”

While Jones had Toni Morrison’s short story “Recitatif” in mind while writing “Kin,” her take on the subject is singular. “Vernice and Annie remain friends because each of them is the keeper of the other’s true self,” she says. “Friendship is particularly meaningful because it’s a relationship you’re constantly recommitting to — reupping.”

Now that “Kin” is out in the world, and Jones has weathered the bumpy road to publication day, we asked her if she’s nervous about how it will be received eight years after her previous novel was published. “I am not ambitious now in the way I was then,” she says. “I’ve learned what success can and cannot do for a person. You have to learn to be satisfied. People say ‘don’t rest on your laurels,’ but what are laurels for?”

Haber is a writer, editor and publishing strategist, and co-founder of the Ink Book Club on Substack. She was director of Oprah’s Book Club and books editor for O, the Oprah Magazine.