Davy

When Zyw was diagnosed with MND, he was working as a sommelier and wine buyer in London. His first symptom was his left thumb going numb.

Initially misdiagnosed as carpal tunnel syndrome, Zyw “had no reason to think about this impossible, improbable diagnosis at the time”.

A third of those diagnosed with the devastating disease die within a year, half die within two. Zyw is one of the “lucky ones”.

While his disease has progressed slowly, he has now lost most of the functionality in his hands, and the muscles in his upper body are wasting away.

A return to snowboarding was one of the positives in the dark aftermath of his diagnosis.

Having learned to snowboard as a child on a dry slope in Edinburgh, he competed as a freestyler into his early 20s before a knee injury put paid to that.

“I learned very quickly that the only aspect of this diagnosis in my control is my attitude towards it,” he added.

“I couldn’t affect how quickly the disease was going to manifest itself, how quickly I was going to fall off a cliff, how quickly I was going to lose motor functions.

“When I held on to that positive message, every day became easier and that’s what I’ve done every day since.”

The Davy Zyw Fan Club has been out in full force at the Games, flying British and Scottish flags and donning blue beanies emblazoned with his surname to watch him in action.

On a bus up to the snowboard park, an impromptu chant of “No Davy, No Party” sounded out, renditions of which carried on throughout the day.

Among those singing course-side were Zyw’s wife Yvie and four-year-old son Aleksander, who was “shouting his head off in celebration and admiration” as his daddy whizzed past during the opening run.

That race, however, did not end as he had hoped – in hospital with two broken ribs after a heavy crash, having already injured his knee in official training.

Such is the pain from his broken ribs, he cannot laugh nor sneeze but nothing was going to stop him being back in the start gate for Friday’s banked slalom.

In that, he finished 19th – but that is irrelevant. This Paralympic experience was never about the medals or results.

“Two years ago I wouldn’t have been classifiable as a Para-athlete and in two years’ time I’m not going to be a competitive snowboarder,” he said.

“So I’m in this sort of tragic period of my diagnosis where I’m ill enough to be classified as a Para-athlete, but well enough to still be able to rip down on my snowboard.

“I’m grateful for the fact that the Games have come at this moment, because in a few years’ time it wouldn’t have been possible.”

Wine merchant Zyw explained that injury denied him the able-bodied snowboarding career he had craved since taking up the sport at the dry slope in the north of Edinburgh.

“I’ve been a snowboarder all my life,” he said. “Me and my twin brother, we started on a Hillend dry slope when we were 12 or 13.

“I’ve been obsessed with snowboarding my entire life. A knee injury took me away from the slopes and into a career in wine.

“But the fact my diagnosis of being with an incurable degenerative neurological condition has brought me back to my childhood dream of being a snowboarder.”

Zyw only decided to put himself forward for the Games in winter 2024 and has financed competing through crowdfunding and support of his employer.

“There’s like a tragic beauty in this situation,” he added.

“Above all, what I love about being on my board, being on the slopes, being in that competition mind zone is, you know, the disability, the daily challenges of MND, of living with this disease are gone and there’s so much freedom in there.

“When I’m dropping in, when I’m strapping, when I’m in the starting gate, MND is, it might be the reason I’m there, but it couldn’t be further removed from what I’m thinking about in that moment.

“I’m thinking about the course in front of me and how I’m going to rip down it the best I can.”