chronic

Twisters star Daisy Edgar-Jones reveals she’s been diagnosed with a debilitating chronic disease after years of pain

ACTRESS Daisy Edgar-Jones has spoken about a crippling health diagnosis – and going through ‘years of unexplained pain’.

The Normal People star, 27, opened up for the first time about suffering from a chronic disease.

Daisy Edgar-Jones has revealed she has been diagnosed with a debilitating chronic diseaseCredit: YouTube/Vogue
The actress opened up about her painful health battleCredit: Getty

The Golden Globe-nominated star told Vogue in a YouTube video: “I have endometriosis, so my hormones are kind of all over the place.

“I had extremely bad acne for most of my teenage years.

“When I had terrible acne, it was all I could see when I looked in the mirror.”

The Twisters star added: “For so long, I had such painful periods and really volatile skin.

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“I was diagnosed when I was, I think I was 24. I was definitely relieved to find out why I was going through it.”

The chronic disease causes inflammation, scarring and – in many cases – excruciating pain.

According to the NHS, it affects around one in ten women of reproductive age in the UK – an estimated 1.5 million people – and there is no cure.

Daisy, who is in a relationship with photographer Ben Seed, said she has found ways to manage the condition’s hormonal effects through diet and skincare.

She explained: “I’ve found over the years skincare that really works for me.

“But I also find drinking lots of water and when I eat well – especially when I try and not eat as much dairy – that really helps.”

She also offered a heartfelt message to others struggling with breakouts.

“When I had terrible acne, it was all I could see when I looked in the mirror.

“But actually when I look back at photos and videos, it’s funny that so much of the beauty of you is inside and the confidence that you wear can really help.

“So I would say to anyone with acne – I know it’s all you can see, but it’s not what everyone else can see.”

The actress was born in Islington, North London, and grew up in the world of entertainment.

Her dad Phil is head of entertainment at Sky TV while her mum Wendy is a former film editor.

The actress was catapulted to fame thanks to her debut lead role in BBC lockdown smash-hit Normal People, alongside Paul Mescal.

The Bafta and Golden Globe-nominated actress trained with the National Youth Theatre from the age of 14 before landing her first professional job at 17, appearing in a Christmas special of BBC sitcom Outnumbered.

Daisy then joined the cast of Cold Feet as Olivia, the on-screen daughter of actress Hermione Norris – shortly before starring in the raunchy drama Normal People, an adaptation of the best-selling Sally Rooney novel.

Daisy has become a Vogue ‘It Girl’Credit: YouTube/Vogue
The actress found fame with Paul Mescal in BBC’s Normal PeopleCredit: BBC/Element Pictures/Hulu
Daisy starred alongside Glen Powell in TwistersCredit: Alamy
Daisy has become a style icon since finding fame in Normal PeopleCredit: Getty

What are the symptoms of endometriosis?

Endometriosis is the name given to the condition where cells similar to the ones in the lining of the womb are found elsewhere in the body.

Each month these cells react in the same way to those in the womb, building up and then breaking down and bleeding.

Unlike the cells in the womb that leave the body as a period, this blood has no way to escape.

This can cause inflammation, pain and the formation of scar tissue.

In the UK, around 1.5 million women and people assigned female at birth are currently living with the condition.

Not everyone with endometriosis experiences symptoms. 

Symptoms can vary in intensity and the amount of endometriosis does not always correspond to the amount of pain and discomfort people have.

The classic endometriosis symptoms include:

  • Pelvic pain
  • Painful periods that interfere with everyday life
  • Pain during or after sex
  • Pain when having a poo
  • Pain when peeing
  • Difficulty getting pregnant
  • Fatigue

Source: Endometriosis UK

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Frustrated by chronic homelessness, they found an answer hiding in plain sight

Light rain slicked the pavement in San Diego’s East Village neighborhood on a recent morning, forcing some homeless people to scatter while others huddled under tents or slept through the drizzle.

I was on foot with Dr. Aaron Meyer, a psychiatrist frustrated by California’s most visible crisis: The failure to provide help for many of the people who need it most, despite all the programs rolled out over the years, and all the billions of dollars spent.

We see them in parks, on sidewalks and in other public spaces in obvious distress, and we’ve heard the never-ending conversations and political promises of better days. The problem goes well beyond homelessness: Thousands of severely ill people live with exasperated family members who wear themselves out trying to get help for loved ones.

“We have a history of services that have ended up prioritizing less severe people rather than the most severe,” said Meyer, a UC San Diego associate clinical professor of psychiatry who was speaking on his own behalf, as a university rep.

In searching for answers, Meyer teamed with lawyer Ann Marie Council, a former San Diego deputy city attorney who once worked in drug court. She was struck by the number of clients spun through the system countless times without getting treatment for addiction or mental illness.

“I was really sick and tired of watching people go to jail when they weren’t getting the help they needed,” said Council, who retired from public service and started Quarter Turn Strategies, a nonprofit focused on practical solutions to fractured public services.

It turns out the doctor and the lawyer make a pretty good team. In their research, they came upon a tool that could address chronic severe mental illness and addiction, and it was hiding in plain sight: in a book of California statutes, namely Section 5200 of the California Welfare and Institutions Code.

The state law governing involuntary commitments and conservatorships for people with severe mental illness is known as the Lanterman-Petris-Short Act, and it includes the commonly used Section 5150 for those deemed “gravely disabled.” The process begins with a 72-hour hold that can lead to a longer commitment, but often does not.

Section 5200 outlines a far more thorough evaluation and care plan than 5150. The 5200 process can be initiated by anybody concerned about someone who is gravely disabled or a danger to themselves or others (with misdemeanor penalties for abuse of the reporting privilege).

Dr. Susan Partovi, who has practiced street medicine in Los Angeles for many years, has a term for the 72-hour hold under 5150:

“We call it the 72-second hold,” she said.

I’ve written previously about Partovi’s moral outrage over the number of severely ill people who either are not deemed “gravely disabled” or who spin repeatedly through three-day holds and return to the same self-destructive routines. I’ve also heard her talk about who among her clients is likely to die next.

Partovi is a member of Grave Disability Workgroup of California, which has endorsed a research paper on 5200, “The Lost Legal Pathway to Mental Health Care,” co-written by Meyer and Council and released a few weeks ago by Quarter Turn. It detailed the frustrations of families, outreach workers and first responders and concluded that 5200 could help break down some of the bureaucratic barriers to life-changing mental health care.

In San Diego, as Meyer and I passed a woman trying to erect a tent in the rain and a person asleep on a littered patch of weeds, I asked him to explain the difference between 5150 and 5200.

Under a 5150 commitment, he said, a person is often brought to an emergency room for an assessment by someone who is not necessarily a behavioral health specialist. A decision is then made about whether the person meets the legal criteria for an involuntary hold.

“If they don’t, then they’re released, and there’s no requirement for any care coordination,” Meyer said. Under 5200, a full medical evaluation is required with a multidisciplinary team, “and it also requires a coordinated care plan on discharge,” raising “the hope of leading to something substantive.”

In their research, Meyer and Council found that 5200 is not known to be in use in any of the state’s 58 counties, with public officials either unaware of it or under the impression that it’s an unnecessary tool given other initiatives over the decades, and cost of implementation could be a problem.

Meyer argues that the state spends billions without addressing glaring needs, and 5200 could cost less than roller-coastering people through hospitals, courts, jails and prisons without putting them on a healthier track.

Meyer said he’s gotten pushback from civil libertarians and disability rights groups, both of which have long opposed coerced treatment and argued instead for a host of greater resources in housing and preventive healthcare, and for more outreach that can lead to voluntary treatment.

I understand the pitfalls of forced treatment, having been on a 20-year journey with someone who initially resisted help and objected to medication. It’s true that forced treatment doesn’t always get the desired outcome, and can backfire if it makes the person more resistant to treatment.

But some people can become too sick to make a decision in their own best interest, which is why we’ve seen so many of them at death’s door, living in squalor and desperation, tortured by psychosis or chewed up by killer drugs.

Care Courts, which were meant to help address this, have not yet had the anticipated impact, and some families have felt let down. Meyer and Council say that although those courts can implement 5200, that isn’t happening yet.

The fact that 5200 is little known and never used “is another example of systems failure,” said former state senator and Sacramento Mayor Darrell Steinberg.

Steinberg said although 5200 isn’t a one-step answer to homelessness or untreated severe mental and addiction illness, it’s worth implementing given the existing “set of systems that are not responsive to people who are the sickest of the sick.”

Jon Sherin, former head of L.A. County’s mental health department, called 5200 “one of the most powerful tools” available and said he tried to implement it several years ago but faced some of the same resistance described by Meyer.

“If you used it thoughtfully and had capacity, you could actually have a massive impact,” said Sherin, who urged those running for governor to “bring 5200 into the limelight and guarantee resources to counties.”

The same can be said about the race for Los Angeles mayor. Despite some progress, homelessness is still a public catastrophe, and gravely ill people are a haunting representation of policy failures.

Supporters of 5200 include Bay Area resident Teresa Pasquini, a mental health reform advocate whose brother and son have both dealt with severe mental illness. Pasquini, whose causes include “Moms on a Mission” and “Housing that Heals,” told me her son, now in his 40s, has been through the 5150 turnstile 40 times.

Pasquini said people in her circumstances have been accused of wanting to shed their troubles by having their kids locked away. All she really wants, she said, is for him to be housed and safe and given proper care.

“We need all the tools we can get … and we need 5200,” Pasquini said. “I’ve watched my son walk out the front door in handcuffs over 40 times. Treatment is not a bad word.”

steve.lopez@latimes.com

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