Cat Deeley

Julie Hayden and Gail Gregory, the self-proclaimed ‘dementia rebels’, appeared on This Morning to share their experiences of living with dementia and challenge misconceptions about the condition

Two women determined to challenge the stigma surrounding dementia have shared their personal journeys living with the condition.

Julie Hayden and Gail Gregory, the self-proclaimed ‘dementia rebels,’ featured on Tuesday’s This Morning to mark Alzheimer’s Society’s Forget Me Not month.

Chatting to hosts Ben Shephard and Cat Deeley, Gail, from Lancashire, disclosed she had received her diagnosis in 2019 aged 54, and was informed at the time she only had six to seven years to live.

“I was running my own business, and we’d noticed changes with my personality,” she explained. “I had an embroidery business like teddy bears and clothing, and we put personalised messages on, and I was taking a lot of information in which I wasn’t retaining. So when people were placing orders, I was having trouble retaining information, so I was making mistakes, which we put down to stress at the beginning because we had just moved.

“As you do, you put things off, and you think it’s going to get better, but it doesn’t get better, it goes worse, and so other things start to creep in,” reports Lancs Live.

Eventually, Gail chose to consult a medical professional and described the assessments she underwent at the doctor’s that proved challenging, such as drawing a clock face, “getting the numbers muddled up,” and attempting to recall an address.

Reflecting on that moment, she said: “You realise there’s something wrong. It’s then that it’s reality, that there’s something wrong. But what, you don’t know.

“Nobody tells you it’s going to be dementia, and you don’t imagine it’s going to be dementia, especially not at the age of 54.

“This is where the perception is wrong. Everybody expects it to be an older person in their later years, what they don’t expect is that people younger than me have been diagnosed, there are even children diagnosed.

“It’s that perception we need to change, because it’s not the end of life, it’s the beginning of a new one.”

Julie also revealed how she had been suffering from “life-changing” symptoms for more than five years when she was diagnosed, but was dismissed by the doctors.

She was told she was depressed and going through menopause, and it took Julie more than five years for a diagnosis.

Julie and Gail are now both supporting other people with dementia, particularly younger people, and fighting back against the stigma of people living with the condition.

As she urged for more training and information to support doctors, Julie said, “I can’t tell you what it’s like to live with cancer and go through the treatments because I’ve never been there. Nobody can tell you what it’s like to live with dementia unless they’ve actually lived with it.”

She added, “I had huge surprises as to what it was like, compared to how I thought it was going to be like when I got my own.”

Sharing her gratitude for the support they’ve both received from friends, family and those spreading awareness, Gail read: “A diagnosis of dementia, it can change many things but it should never, ever change our worth.

“We don’t need pity, and we don’t need to be pushed aside, because we need understanding and support and the opportunity to continue to live our lives with purpose, dignity, and connection.”

She added, “When I got my diagnosis, they said to me I would have six to seven years to live. I’m in those years now, and I’m still going, and what people should be saying to us is, go outside and live your life. Do the things that you want to do because that’s what life’s about at the end of the day, it’s about living.”

She continued: “I’m very grateful for dementia, because dementia has made me calm down. It’s made me appreciate the things that we have, like nature and things like that; it’s been wonderful. We get so many opportunities that we wouldn’t even dream of having, like coming here today, it’s wonderful.”

This Morning airs weekdays from 10am on ITV1 and ITVX.

For more information, visit https://www.alzheimers.org.uk/

The personal finance guru said whatever happens ‘don’t wait till you get to your destination’

Personal finance expert Martin Lewis has issued a warning to anyone using an airport this summer. People going on holiday have been told they will be making a big mistake if they make a key decision when they are ‘captive custom’.

People travelling this year are already concerned about potential cost rises and delays caused by the situation in the Middle East. Mr Lewis, appearing on ITV’s This Morning, explained that making any effort to get cash while at the airport is a mistake.

He told hosts Ben Shephard and Cat Deeley that people like to take cash for things like tips – and also some prefer to use it to budget more effectively. He said: “The worst place to get your cash is at the airport or at the ferry port or anywhere like that because they have your captive custom and the rates are horrendous.

“The best thing to do is to use a couple of travel exchange comparison sites online. Now, the thing is, you have to be careful. It’s a combination of the exchange rate and the fee. So what exchange rate are they giving you? What fee are they giving you? You want that all combined. And that’s what the comparison sites will do.

“You’ll just say, ‘I want £600 worth of dollars. Who’s going to give me the most dollars for my £600?’ And that’s the way that they will work. So, that’s by far the simplest way to do it. Just get yourself on a comparison. But don’t wait till you get to your destination.”

He said that comparison sites will look at perhaps 50 or 60 outlets, whereas if you go abroad before looking it’s unlikely those available will be able to compete. He said “If you go regularly to the same price abroad and you know there’s a little fella and you know and he gives you great rates and they’re much better than the ones at home then it’s fine.

“But if you don’t have that specialist knowledge, do the comparison, take the cash before you go. I mean also if you really do want cash, if you got a specialist overseas card, you know you got a Chase card or something just put it in the cash machine abroad. There’s no fees and you get the near-perfect exchange rate. So that’s another way to get cash.”

Mr Lewis also explained that anyone spending money in European destinations such as Spain, Greece or France should always make one decision when it comes to paying or getting money out. He explained that if people have gone to the trouble of lining up a card to work overseas, then they’re actually adding lots of money onto their bills by making the wrong choice when asked if it’s euros or pounds.

He said: “If you spend, if you go to a machine abroad or you go to an ATM and you’re in Europe, let’s say, or if it says, do you want euros or pounds? What it’s actually saying is if it’s euros, do you want your card to do the conversion? Your card company. If it’s pounds, we will do the conversion. for you and then charge your card. So, that’s the decision. Now, we’ve just talked about getting a specialist overseas card that gives you a near-perfect rate.

“Well, you want them to do the conversion. That’s why you got the specialist overseas card. And actually, even if you haven’t got a specialist card, even the bog standard pretty pants cards here tend to be better than the shop abroad doing it where they put a massive we can be six or 7% on the exchange rate.

“The same with overseas cash machines, which can also add a fee on top, but what happens is basically you put, let’s say, you’re in a cash machine abroad and it’s saying pounds or euros, and you say, as I will absolutely do. I go, I want euros, please, and it says are you sure you’re sure we won’t do the conversion are you actually? Yes, I want euros. Are you sure? What are you doing?

“They are desperate to persuade you to let them do the conversion because they make a lot of money from it it’s the opposite of what they’re trying to push you to do is what you want to do so very simply if you’re in Europe and you paying on a card, paying euros if you’re in America, pay in dollars if you’re in Vietnam.”