als

Chris Johnson revives 2014 viral ALS Ice Bucket Challenge

Former NFL running back Chris Johnson has issued a challenge to his family, friends and fans — one that could quite literally send a chill down the spine of those who remember a certain viral trend from more than a decade ago.

A quick refresher: A social media sensation went viral in 2014, involving people posting videos of themselves having a bucket of ice water poured over their heads and challenging others, by name, to do the same.

The trend was often referred to as the ALS Ice Bucket Challenge because many folks used the videos to raise awareness for and funding to help fight the degenerative neurological disorder amyotrophic lateral sclerosis, commonly known as ALS or Lou Gehrig’s disease.

Johnson, a three-time Pro Bowl selection who holds the NFL record for most yards from scrimmage in a single season, on Tuesday revealed on “Good Morning America” that he has been diagnosed with ALS. Soon after, former Utah basketball player and sports content creator Hunter Mecum posted a video on Instagram in which he dumped a large bowl of ice water on himself in Johnson’s honor.

That video inspired Johnson to bring the movement back.

“Man… the love y’all have shown me these last few days really [means] more than you know. Me and my family appreciate every prayer, message and every bit of support,” Johnson wrote on Wednesday on Instagram.

“After seeing @huntermecum video, I’m asking y’all to help me with something. Let’s bring back the ALS Ice Bucket Challenge. Grab a bucket, challenge 3 people and if you can, donate to help fund ALS research.”

Johnson included a link in his bio to a fundraiser for ALS research set up in his honor. As of Thursday morning, it had raised more than $32,000.

The retired player known as CJ2K also called on three people to accept the ice bucket challenge — ex-Tennessee Titans teammate LenDale White and fellow former NFL greats Marshawn Lynch and Adam “Pacman” Jones.

So far, White and Lynch have accepted Johnson’s challenge. Lynch, the former star running back for the Seattle Seahawks and Oakland Raiders, obliged by getting hailed on by a bucket of ice.

White, who was Johnson’s “Smash and Dash” counterpart in the Titans backfield, took the traditional ice water route and nominated former NFL players Deion Sanders, Vince Young and Michael Sims-Walker, who was on hand at the time and accepted the challenge in a separate video.

Johnson also posted a video of his daughter Honey Love taking the challenge, with White handling the ice-bucket duty. She nominated her brothers and former Lakers superstar LeBron James.

James hasn’t yet responded, but he was one of the many celebrities who took part in the original challenge 12 years ago. Others included Kobe Bryant (who submerged himself in an ice tub), Shaquille O’Neal (who humorously poured one drop of water on his head) and Donald Trump (who joked he was nominated because “they want to see whether or not it’s my real hair, which it is”).



Source link

Former Titans star running back Chris Johnson reveals ALS diagnosis

Chris Johnson, the former NFL running back who holds the record for most yards from scrimmage in a single season, has the degenerative neurological disorder amyotrophic lateral sclerosis, commonly known as ALS or Lou Gehrig’s disease.

Johnson shared the diagnosis during an interview with Michael Strahan that aired Monday on ABC’s “Good Morning America.” The 40-year-old father of four spoke in his own voice but didn’t use his mouth — instead, he used his eyes to trigger a device that generated sentences based on recordings Johnson made soon after he was diagnosed last year.

“It’s continued to progress much faster than I ever imagined,” Johnson said of the disease. “I want people to understand just how quickly ALS can attack your body. Just over a year ago, I was picking up my 7-year-old daughter so she’d make a wish with her birthday cake. Today, I couldn’t do that.”

There is currently no known treatment that stops or reverses ALS, according to the National Institute of Neurological Disorders and Stroke, and most people with disease die of respiratory failure within three to five years of noticing symptoms (although one in 10 survive a decade or more).

In addition to receiving the standard medication to help slow the disease’s progression, Johnson has been working with neurologist and leading ALS researcher Dr. Merit Cudkowicz. She told “Good Morning America” that Johnson has taken part in a clinical trial for a therapy “that decreases inflammation, and I think that helped him a lot.”

“At first, you’re in shock, then you realize you have two choices: You can give up, or you can fight,” Johnson said. “I chose to fight.”

Johnson’s wife Brittany told Strahan: “We’re still hopeful. We’re hopeful that a breakthrough will happen or … a miracle will happen.”

Selected by the Tennessee Titans at No. 24 in the 2008 draft, Johnson was an instant NFL star. He made the Pro Bowl in each of his first three seasons and was named the league’s offensive player of the year in 2009. Also that season, Johnson led the NFL with 2,006 rushing yards — earning the nickname CJ2K as one of only nine players to have rushed for 2,000 or more yards in a season — and set a record with 2,509 yards from scrimmage that still stands.

Johnson rushed for more than 1,000 yards in each of his six seasons with the Titans, then spent a year with the New York Jets and three more with the Arizona Cardinals before retiring after the 2017 season. He finished with 9,651 yards and 55 touchdowns rushing and 2,255 yards and nine touchdowns receiving.

Titans owner Amy Adams Strunk released a statement Monday morning after Johnson’s diagnosis was revealed.

“Learning this news is extremely difficult, and we will support Chris every step of the way throughout his journey,” she wrote. “We are holding him and his family close, and join our fans around the world in expressing our love for Chris.”

The Jets and Cardinals also released statements expressing their support for Johnson.

While Johnson’s body will no longer allow him to perform a task like gripping a cup, he said he wants people to know that with ALS, “your mind stays sharp.”

“People sometimes look at the physical disability and assume you’re not still the same person inside,” Johnson said. “I still think the same. I still dream. I still love my family. My body just doesn’t cooperate.”

Source link

Pierre Deny dead aged 69: French TV star who played fashion boss in Netflix smash Emily in Paris dies after ALS battle

An image collage containing 1 images, Image 1 shows Pierre Deny as Louis De Leon in Emily in Paris, wearing a suit and smiling

A FRENCH actor with a role in Netflix series Emily in Paris has died after a brave battle with amyotrophic lateral sclerosis.

Pierre Deny, a dearly beloved face on French television for decades, died on Monday at the age of 69 from complications with the disease that causes progressive muscle paralysis.

NINTCHDBPICT001084058845
Pierre Deny as Louis De Leon in episode 308 of Emily in Paris Credit: MARIE ETCHEGOYEN/NETFLIX
NINTCHDBPICT001084058843
Deny in Emily in Paris alongside the rest of the cast Credit: MARIE ETCHEGOYEN/NETFLIX

“It is with deep emotion that we announce the passing of Pierre Deny, which occurred this Monday following a sudden and severe case of ALS,” his daughters said in a statement.

Also known as Charcot’s disease, ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord.

It leads to muscle weakness, atrophy, and paralysis, eventually affecting the ability to speak, eat, and breathe.

Tributes have been paid to the star by other celebrities, hailing him as a “generous actor”.

DRUG BUST

Emily in Paris star arrested over drug smuggling as cops find ‘crystal substance’


MUM IN PARIS

Becoming mum meant I messed up on show but there’s benefit, says Lily Collins

Sylvie Vartan, Bulgarian-French singer and actress, wrote on Instagram: “It is with great sadness that I learned of the passing of Pierre Deny.

“I shared many wonderful moments with him on stage in Isabelle Mergault’s play.

“He was a generous actor and a sensitive and funny man. In these painful moments, my thoughts are with his family and loved ones.”

Raphael Benoliel, someone who said was a friend of Deny’s, described him as a “great artist” and a “magnificent person.”

What is ALS?

AMYOTROPHIC lateral sclerosis (ALS) is a progressive disease that affects nerve cells in the brain and spinal cord.

It is a debilitating and painful condition in which the motor neurons – cells that control voluntary muscle movement – are gradually lost, leading to people slowly losing control of their bodies.

The average age of diagnosis is about 60 years old, though it can also affect people who are significantly younger.

In the early stages, the symptoms can be subtle, but as the disease progresses, they become more noticeable.

Here’s a look at what to watch out for:

  1. Weakness in a limb, which develops over a few days or weeks
  2. Slurred speech or difficulty swallowing

As ALS progresses, you may experience more common symptoms such as:

  1. Muscle twitching and cramping, especially in the hands and feet
  2. Loss of control in the hands and arms
  3. Trouble using your arms and legs
  4. Tripping or falling more often
  5. Dropping things
  6. Extreme fatigue that doesn’t go away
  7. Uncontrollable laughing or crying
  8. Slurred or thick speech, and difficulty projecting your voice

In the later stages, ALS can cause:

  1. Difficulty breathing
  2. Trouble swallowing food or liquids
  3. Paralysis

Some of these symptoms may be caused by other health problems.

“I shared with him a passion for soccer that he loved above all else … he was a true enthusiast, and we were still playing together just a year ago like a couple of kids,” the post on X read.

“He had the joy of the game, the joy of being together, the love of effort, of life … That goddamn Charcot’s disease took him away far too soon … it’s so unfair.”

The actor began his career in theatre in the 1980s before moving into film and television.

He was particularly known for his roles in the police series such as “Julie Lescaut” or “Une femme d’honneu”, where he played Captain Philippe Kremen.

He also played the role of Renaud in the soap opera “Demain nous appartien” in which he appeared in 500 episodes. 

Most recently, Deny appeared in seasons three and four of Emily in Paris, in which he played Louis de Léon, CEO of fashion giant JVMA.

Source link

Why Dodgers’ Emmet Sheehan has ‘K ALS’ stitched into glove

Dodgers right-hander Emmet Sheehan first met MLB.com researcher extraordinaire Sarah Langs during the World Series last year. But he’d known of her before that.

Langs, who turned 33 on Saturday, made her mark on the industry early in her career. Even as a young writer, her talent for digging up interesting stats, along with her contagious positivity and love for the game, set her apart in a crowded media landscape.

Langs was aware of Sheehan too, not only for his blossoming major league career, but also the message stitched into his glove: “K ALS.”

Langs was diagnosed in 2021 with Amyotrophic Lateral Sclerosis, a progressive neurodegenerative disease, also known as Lou Geherig’s disease after the Hall of Fame New York Yankees first baseman. Langs advocates for ALS research, partnering with Project ALS, and frequently highlights others who are raising awareness and funds for the cause.

“Just getting the chance to meet her was awesome,” Sheehan said in a conversation with The Times. “She’s a great advocate and a really smart mind in the world of baseball. So it’s awesome to have her.”

When Sheehan pitches, Langs posts pictures of the message on his glove. For his start Friday, Langs’ post included the caption: “May is ALS Awareness Month. Fitting that Emmet Sheehan is on the mound tonight. His gloves all say ‘K ALS.’ How lucky are we to have that sentiment represented on an MLB mound?!”

The next day, MLB posted a video of Sheehan wishing Langs a happy birthday and letting her know he was gifting her a glove as a token of his appreciation.

“I’m happy I get to be a part of the league where [ALS research and awareness] is kind of a main focus,” Sheehan said Saturday, also highlighting Chicago Cubs broadcaster Jon “Boog” Sciambi’s work through Project Main Street. “It’s been really cool.”

Sheehan has displayed “K ALS” on his gloves since college, when he joined a Boston College program that embraced the cause.

Pete Frates, who popularized the ALS Ice Bucket Challenge in 2014, was a former B.C. baseball standout. And he returned to serve as the director of baseball operations in 2012, the year he was diagnosed with ALS.

During Sheehan’s first year at Boston College, he got to spend time with Frates and his family before Frates died in December 2019.

“We talked about it a ton,” Sheehan said. “It was a huge part of our program. So it was a good opportunity to learn about it and just how terrible the disease is and how it can affect people.”

The lesson stuck with him. And now, as a major league player, he’s passing it on.



Source link